Why measure outcomes?

There is significant variation in the outcomes healthcare providers measure, how they measure them and how those outcomes are used.

Often, outcomes that are measured are process measures and do not accurately report how the patient feels as a result of treatment and their quality of life as a result.

At ICHOM, we’re committed to supporting healthcare providers globally so they focus their resources on delivering outcomes that make the biggest difference to patients and their experience of care.

Outcomes defined: The results people care about most when seeking treatment, including functional improvement and the ability to live normal, productive lives.

ICHOM Sets of Patient-Outcome Measures


ICHOM Sets are standardized outcomes, measurement tools and time points and risk adjustment factors for a given condition. Developed by a consortium of experts and patients in the field, our Sets focus on what matters most to the patient.

By creating a standardized list of the outcomes based on the patient’s priorities along with instruments and time points for measurement, we can ensure the patient remains at the centre of their care. For valid comparison, we know the importance of risk adjustment, so we also standardize these case mix variables.

When developing a Set, we bring together a multidisciplinary group of patient representatives, leading physicians and registry leaders to prioritize a core set of outcomes, which take into consideration outcomes from different treatments.

Through the implementation of these Sets, you can begin to measure, analyze and improve outcomes achieved in the delivery of care. We are continually reviewing our published Sets.

To date, we have published 40 Sets covering different conditions and for specific patient populations.

We are continually reviewing our published Sets

How we work

ICHOM brings together global teams of patient advocates, physicians and outcomes researchers to define Standard Sets of outcomes per medical condition or patient population

Our Methodology

Each Set takes around 9 months to put together following rigorous methodologies: we review existing outcome measurements practices in the field, conduct modified Delphi surveys to gain consensus as a group, and reach out to a wider network for an open review of the Set.

We don’t aim to reinvent the wheel: by using existing measurement tools, we can ensure our Sets are ready for implementation globally.

Contact us

There are many opportunities for different stakeholders to get involved in the creation and review process of ICHOM Sets.

If you are interested in joining one of our working groups or funding a new Set, please contact our standardization team: