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Breast cancer

The standard set

The ICHOM Standard Set for Breast cancer is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Breast cancer. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Complications will be recorded based on the type of therapy needed or action required to correct the complication as described in the Clavien-Dindo Classification and CTCAE v4.0

2 Includes depression and anxiety.

3,4 Recommended to track via the EORTC Quality of Life Questionnaire - Core Questionnaire (EORTC QLQ-C30).

5 Includes body image and satisfaction with breast(s). Recommended to track via the EORTC Quality of Life Questionnaire - Breast Cancer Specific Questionnaire (EORTC QLQ-BR23) and the BREAST-Q - Satisfaction with Breasts.

6 Includes arm and breast symptoms. Recommended to track via the EORTC Quality of Life Questionnaire - Breast Cancer Specific Questionnaire (EORTC QLQ-BR23).

7 Recommended to track via the EORTC Quality of Life Questionnaire - Breast Cancer Specific Questionnaire (EORTC QLQ-BR23).

8 Recommended to track via a single item from the EORTC Quality of Life Questionnaire - Liver Metastases Colorectal Module (EORTC QLQ-LMC21).

9 Recommended to track via a subset of questions from the Functional Assessment of Cancer Therapy-Endocrine Symptoms (FACT-ES).

10 Includes sexual functioning and vaginal symptoms. Recommended to track via the EORTC Quality of Life Questionnaire - Breast Cancer Specific Questionnaire (EORTC QLQ-BR23) and a subset of questions from the Functional Assessment of Cancer Therapy-Endocrine Symptoms (FACT-ES).

11 Includes physical, emotional, cognitive and social functioning, ability to work and overall well-being. Recommeded to track via the EORTC Quality of Life Questionnaire - Core Questionnaire (EORTC QLQ-C30).

12 Includes overall and cause-specific survival.

Download the flyer

A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.

Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.

Data Dictionary

An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.

Team that developed this standard

Australia

Rodney Cooter | Monash University
Geoff Delaney | South Western Sydney, Local Health District
Patricia Hancock* | Breast Cancer Network Australia
Wee Loon Ong | Peter MacCallum Cancer Centre
Christobel Saunders | University of Western Austrlia
Lisa Sheeran | Peter MacCallum Cancer Centre

Belgium

Francois Duhoux | Cliniques Universitaires Saint-Luc

Ireland

John Browne | University College Cork

Malaysia

Cheng Har Yip | Subang Jaya Medical

Italy

Karen Benn* | Europa Donna

Mexico

Felicia Knaul* | Cancer de Mama

Netherlands

Anne Knip* | Borstkanker Vereniging Nederland
Linetta Koppert | Erasmus MC Cancer Institute
Marc Mureau | Erasmus MC Cancer Institute
Mark Stoutjesdijk | Ikazia Hospital Rotterdam
Marie-Jeanne Vrancken Peeters | Antoni van Leeuwenhoek

Sweden

Yvonne Wengström | Karolinska Institutet

United States

Kimberly Allison | Stanford University, School of Medicine
Patricia Ganz | UCLA Schools of Medicine & Public Health
Reshma Jagsi | University of Michigan
Henry Kuerer | MD Anderson Cancer Center
Sarah McLaughin | Mayo Clinic Jacksonville
Ann Partridge | Dana-Farber Cancer Institute
Dereesa Reid* | Hoag Orthopedic Institute
Thomas Smith | Johns Hopkins Institute

*Patient representative

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