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Paediatric Facial Palsy

The standard set

The ICHOM Standard Set for Paediatric Facial Palsy is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Evaluated via eFACE

2 Tracked via FACE-QKIDS - Appearance of the face

3 Evaluated via eating and drinking questions

4 Evaluated via speech questions

5 Tracked via Visual Analogue Scale

6 Evaluated via Snellen Chart

7 Evaluated via ocular symptoms questions

8 Tracked via PROMIS Paediatric Global Health

9 Tracked via PROMIS Peer-Relationships

Download the flyer

A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.

Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.

Data Dictionary

An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.

Team that developed this standard

Project team

Chair | Adriaan Grobbelaar | Royal Free Hospital
Research Fellow | Daniel Butler | Imperial NHS Foundation Trust
Core Working Group Member | Tessa Hadlock | Harvard Medical School
Core Working Group Member | Gregory Borschel SickKids
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM

Australia

Christopher Coombs | Southern Plastic Surgery

Canada

Jocelyne Copeland | SickKids

Finland

Sinikka Suominen | Helsinki Uniersity Hospital

Japan

Akihiko Takushima | Kyorin University Hospital

Mexico

Alexander Cárdenas Mejía | Hospital Dr. Manuel Gea González
Evangelina Vazquez Curiel* | Patients for Patient Safety

Spain

Teresa González Otero | Hospital La Paz

United Kingdom

Louise Graham* | Patient Representative
Raman Malhotra | Queen Victoria Hospital

United States

Faye Wachs | California State Polytechnic University Pomona
Jacqueline DIels | University of Wisconsin Hospital and Clinics
Kathleen Bogart | Oregon State University Lisa Ishii | Johns Hopkins Hospital
Lisa McKinley* | Facial Paralysis and Bell’s Palsy Foundation
Mara Robinson | Massachusetts Eye and Ear Infirmary
*Patient representative

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View more standard sets

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Diabetes, blood, and endocrine

Paediatric Facial Palsy

Congenital anomalies

Congenital Upper Limb Anomalies

Congenital anomalies

Inflammatory Arthritis

Musculoskeletal

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