Congenital Upper Limb Anomalies

The standard set

The ICHOM Standard Set for Congenital Upper Limb Anomalies is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Includes mortality, bleeding, infection, wound healing and general medicine

2 Evaluated via Goniometry

3 Evaluated via Manual Muscle Strength Testing

4 Evaluated via Dynamometry

5 Tracked via PROMIS Upper Extremity

6 Appearance tracked via Likert Scale

7 Tracked via PROMIS Depression

8 Tracked via PROMIS Anxiety

9 Tracked via PROMIS Paediatric Global Hea

10 Tracked via PROMIS Peer-Relationships

Implement with ICHOM

STANDARD SET MATERIALS

Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Press Release
Published Articles
Additional materials

ICHOM Connect

Team that developed this standard

Project team

Australia

David McCombe | Royal Children’s Hospital Melbourne
Richard Lawson | New Children’s Hospital - Sydney

Canada

Kristen Davidge | SickKids

India

Raja Sabapathy | Ganga Hospital

Italy

Tracy Fairplay | Studio Fairplay

Sweden

Anna Gerber Ekblom | Karolinska Institutet
Liselotte Hermansson | Örebro University Hospital

United Kingdom

Andrea Jester | Birmingham Children’s Hospital

United States

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Congenital Upper Limb Anomalies

The standard set

STANDARD SET MATERIALS