Completed

The ICHOM Set of Patient-Centered Outcome Measures for Eating Disorders is the result of hard work by a group of leading clinicians, researchers, and patients. It is our recommendation of the outcomes that matter most to patients with eating disorders. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Eating Disorder symptoms (except ARFID) reported with EDE-Q in adolescents and adults (15+ years) and ChEAT in children (8-14 years).
  2. ARFID symptoms in children reported with NIAS (age 10+ years) or EDY-Q (age 7-13 years). ARFID symptoms in adults reported with NIAS.
  3. Includes Depression Symptoms, Anxiety Symptoms and Suicidal Ideation.
  4. Depression Symptoms and Anxiety Symptoms in children and adolescents reported with RCADS-25. Depression Symptoms and Suicidal Ideation in adolescencts and adults reported with PHQ-2 and PHQ-9. Anxiety Symptoms in adults reported with GAD-2 and GAD-9.
  5. Reported via the KIDSCREEN-10 for children, and with the 12-item WHODAS 2.0 (general quality of life) and CIA (eating disorder-specific quality of life and social functioning) in adults.
  6. Includes: Work/School and Interpersonal relationships

 

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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

PROJECT TEAM
Co-Chair | Christine Peat | University of North Carolina at Chapel Hill
Co-Chair | Tracy Richmond | Boston Children’s Hospital; Harvard Medical School
Research Fellow | Amelia Austin | King’s College London
Project Manager | Christiana Ilesanmi | ICHOM
Project Manager | Theerawich Likitabhorn | ICHOM
Project Manager | Umanga de Silva | ICHOM
Research Associate | Isabel Miller | ICHOM
Director | Luz Sousa Fialho | ICHOM

Australia
Belinda Caldwell | Eating Disorders Victoria
Elizabeth Tan*
Janice Russell | Royal Prince Alfred Hospital, University of Sydney
Sarah Maguire | InsideOut Institute, University of Sydney

Brazil
Carolina Meira Moser | Universidade Federal do Rio Grande do Sul

Canada
Howard Steiger | McGill University/ Douglas Institute

Germany
Beate Herpertz-Dahlmann | RWTH Technical University of Aachen

Israel
Yael Latzer | University of Haifa; Eating Disorders Clinic Rambam Medical Center, Israel

Malaysia
Sook Ning Chua | Relate Mental Health Malaysia

Mexico
Eva Trujillo-ChiVacuan | Tec Salud, Medical School

Netherlands
Eric van Furth | GGZ Rivierduinen

Pakistan
Madeeha Malik | Hamdard University

Portugal
Paulo PP Machado | University of Minho

Singapore
Chu Shan Elaine Chew | KK Women’s and Children’s Hospital

Taiwan
Mei-Chih Meg Tseng | Taipei Medical University

United Arab Emirates
Carine El Khazen Hadati | American Center for Psychiatry and Neurology; The Middle East Eating Disorders Association

United Kingdom
James Downs*

United States
S. Bryn Austin | Havard Chan School of Public Health
Elissa Myers* | Advice & Consensus
Iris Ruth Pastor* | Academy of Eating Disorders
Jennifer Wildes | University of Chicago
Jillian Lampert | The Emily Program; REDC
Lauren Smolar* | National Eating Disorders Association
Suzanne Dooley-Hash* | The University of Michigan

*Patient representative

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