We are pleased to announce that the ICHOM Neurodevelopmental Disorders (NDD) Working Group’s article detailing the development process of the NDD Set has now been published in JAMA Network Open. The article sheds light on the rigorous methodology and components of patient-centered research that were followed to develop a Set that emphasizes the importance of measuring outcomes that matter most to individuals living with NDDs. 

Please find the article here: https://doi.org/10.1001/jamanetworkopen.2024.16760

We extend our sincere thanks to the dedicated members of the NDD Working Group for their expertise and commitment, allowing for the successful completion of the NDD Set and accompanying article. In particular, we would like to thank Working Group Chair Prof. David Coghill (University of Melbourne) and Research Fellow Dr. Melissa Mulraney (University of Melbourne) for their pivotal role in seeing this important work through to the finish line.