Completed & Harmonized
The ICHOM Set of Patient-Centered Outcome Measures for Venous Thromboembolism results from hard work by a group of leading healthcare providers, researchers, and patient representatives. It represents the outcomes that matter most to people (≥16 years old) with Pulmonary Embolism, Deep Vein Thrombosis, and other related conditions*. We urge all providers worldwide to start measuring these meaningful outcomes, which will guide them to improve their care quality.
- Measured using the PROMIS Scale v1.2 – Global Health, PEmb-QoL, and VEINES-QOL questionnaires
- Measured using the Post-VTE Functional Status Scale
- Measured using the PROMIS Short Form v2.0 – Pain Intensity – 3a
- Measured using the PEmb QoL and PROMIS Short Form v1.0 – Dyspnea Severity – 10a
- Measured through the question: “Are you satisfied with your VTE treatment?”
- Measured using the Anti-Clot Treatment Scale
- Measured using the PHQ-9 and GAD-7 questionnaires
- Measured through the question: “Have you experienced a change in your expectations, aspirations,
values, or perspectives on life opportunities since the diagnosis of Venous Thromboembolism?” - Measured using the Villalta Score
- Chronic Thromboembolic Pulmonary Disease
- Chronic Thromboembolic Pulmonary Hypertension
*Including anti-phospholipid syndrome, <3-month life expectancy, pregnancy-related VTE, and cancer-associated thrombosis
Our sponsors
Our Cardiometabolic Family of Sets updates sponsor
Team that developed this set
PROJECT TEAM
Chair | F.A. (Erik) Klok | Leiden University Medical Center
Chair | Stephen Black | King’s College London
Research Fellow | Cindy de Jong | Leiden University Medical Center
Research Fellow | Adam Gwozdz | King’s College London
Director of Outcomes Research | Luz Fialho | ICHOM
Project Manager | Theerawich (Will) Likitabhorn | ICHOM
Research Associate | Frieda Sossi | ICHOM
Research Associate | Paula Blancarte Jaber | ICHOM
AUSTRIA
Cihan Ay | Clinical Division of Haematology and Haemostaseology, Medical University of Vienna
BRAZIL
Marcelo Basso Gazzana | Hospital Moinhos de Vento; ANAHP
CANADA
Kerstin de Wit | Queen’s University; McMaster University
Jean-Philippe Galanaud | Sunnybrook Health Sciences Centre
Nicole Langlois | Ottawa Hospital Research Institute
DENMARK
Anette Arbjerg Højen | Aalborg University
FRANCE
Cécile Tromeur | CHU Brest; GETBO, Université de Bretagne Occidentale; F-CRIN INNOVTE, Saint Étienne
Laurent Bertoletti | CHU de St-Etienne; Université Jean-Monnet, SAINBIOSE; F-CRIN INNOVTE, Saint Étienne
THE NETHERLANDS
Arina Ten Cate-Hoek | Maastricht University Medical Centre
Esther Nossent | Amsterdam University Medical Centre Noa Smolenaars*
PERU
Paula Ponce de León Lovatón | Clínica San Felipe – Red SANNA
SPAIN
Juan Arcelus | University of Granada Medical School
SWEDEN
Eli Westerlund | Department of Clinical Sciences, Karolinska Institutet; Danderyd Hospital
SWITZERLAND
Helia Robert-Ebadi | Geneva University HospitalsStefano Barco | University Hospital Zurich
TAIWAN
Kang-Ling Wang | Taipei Veterans General Hospital
UNITED KINGDOM
Alexander Cohen | Guy’s and St. Thomas’ Hospital; King’s College London
Mark Toshner | University of Cambridge
Julie Bayley* | University of Lincoln
Simon Noble | Marie Curie Palliative Care Research Centre, Cardiff University
UNITED STATES
Jean M. Connors | Brigham and Women’s Hospital, Harvard Medical School
Mark H. Meissner | University of Washington
Nicos Labropoulos | Stony Brook Hospital
Rachel P. Rosovsky | Massachusetts General Hospital, Harvard Medical School
William R. Auger | University of California, San Diego
Erin H. Murphy | Atrium Health
TEAM THAT FACILITATED THE UPDATE OF THIS SET AS PART OF THE CARDIOMETABOLIC FAMILY UPDATES INITIATIVE:
Elena Arbelo | Hospital Clínic Barcelona
Menno Huisman | Leiden University
Andreas Bollman | Heart Centre Leipzig
Benjamin Steinberg | University of Utah School of Medicine
John Beltrame | University of Adelaide
Tom Lumbers | University College London
Cristina García Ulloa | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Andrew Pumerantz | WesternU, Population Health Science
Sergio Hernández | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Søren Skovlund | Evidera
Mark Peyrot | Loyola University Maryland
Magdalena Walbaum | London School of Economics and Political Science
Erik (F.A.) Klok | Leiden University
Albertino Damasceno | Eduardo Mondlane University
Camila de Menezes Succi | Dasa Hospitals
Jana Nano | Helmholtz Zentrum München
Kevin Veen | Erasmus Medical Centre
Cindy de Jong | Leiden University
Tim Benson* | Nile Health
* Patient Representative
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