The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
2 Individual treatments received for macular degeneration
3 Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire
Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.
Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University
Norfariza Ngah | Hospital Selayang
Caroline Klaver | Erasmus Medical Center
Gemmy Cheung | Singapore National Eye Center
Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden
Daniel Barthelmes | University Hospital Zurich
Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society
Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University
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