Macular Degeneration

The standard set

The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Endophthalmitis

2 Individual treatments received for macular degeneration

3 Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire

3 Presence of fluid, edema, or hemorrhage


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard


Mark Gillies | University of Sydney


Kim Ramasamy | Aravind Eye Care System


Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University


Norfariza Ngah | Hospital Selayang
Dato Shankar*


Caroline Klaver | Erasmus Medical Center


Gemmy Cheung | Singapore National Eye Center


Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden


Daniel Barthelmes | University Hospital Zurich

United Kingdom

Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society

United States

Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University

*Patient representative

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