The standard set
The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Endophthalmitis
2 Individual treatments received for macular degeneration
3 Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire
3 Presence of fluid, edema, or hemorrhage
Download the flyer
A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide
A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary
An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Team that developed this standard
Australia
Mark Gillies | University of Sydney
India
Kim Ramasamy | Aravind Eye Care System
Japan
Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University
Malaysia
Norfariza Ngah | Hospital Selayang
Dato Shankar*
Netherlands
Caroline Klaver | Erasmus Medical Center
Singapore
Gemmy Cheung | Singapore National Eye Center
Sweden
Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden
Switzerland
Daniel Barthelmes | University Hospital Zurich
United Kingdom
Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society
United States
Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University
*Patient representative
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