Completed
The ICHOM Set of Patient-Centered Outcome Measures for Preterm and Hospitalised Newborn Health is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to the parents of Preterm and Hospitalised Newborns. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
Patient Reported Outcome Measures (PROMs)
1 Measured by the PARCA-R
2 Measured by the Strengths and Difficulties Questionnaire for 2-4 Year Olds
3 Measured by the Modified Checklist for Autism in Toddlers, Revised
4 Measured by the TNA-AZL Preschool Children Quality of Life Questionnaire
Team that developed this set
PROJECT TEAM
Working Group Chair | Andreas Flemmer | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Esther Schouten | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Johanna Steckermeier | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Project Manager | Jessily P. Ramirez | ICHOM
Project Manager | Nick Sillett | ICHOM
Research Associate | Christina Nielsen | ICHOM
AUSTRALIA
Jeanie Cheong | Murdoch Children’s Research Institute
Kylie Pussell | Miracle Babies Foundation *
BRAZIL
Alicia Matijasevich | Departamento de Medicina Preventiva, Faculdade de Medicina FMUSP, Universidade de São Paulo
CANADA
Linda Johnston | University of Toronto
FRANCE
Jennifer Zeitlin | Inserm
GERMANY
Silke Mader | European Foundation for the Care of Newborn Infants (EFCNI) *
GHANA
Selina Bentoom | African Foundation for Premature Babies and Neonatal Care*
Kojo Yeboah-Antwi | Father Thomas Alan Rooney Memorial Hospital
GREECE
Eleni Vavouraki | Ilitominon *
INDIA
Arti Maria | Dr. Ram Manohar Lohia Hospital
MEXICO
Ilein Bolaños González | Con Amor Vencerás*
Naira Pereyra | Hospital Star Medica Infantil
NETHERLANDS
Jasper Been | Erasmus MC – Sophia Children’s Hospital
REPUBLIC OF IRELAND
Mandy Daly | Irish Neonatal Health Alliance*
SINGAPORE
Rashmi A. Mittal | KK Women’s and Children’s Hospital
UNITED KINGDOM
James Webbe | Imperial College London
Dieter Wolke | University of Warwick
UNITED STATES
Haresh Kirpalani | Children’s Hospital of Philadelphia
Josef Neu | University of Florida
ZAMBIA
Kunda Mutesu-Kapembwa | University Teaching Hospital/Women and Newborn Hospital, Neonatology Department
*Patient Representative
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