The ICHOM Standard Set for Preterm and Hospitalised Newborn Health is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to the parents of Preterm and Hospitalised Newborns. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
Patient Reported Outcome Measures (PROMs)
1 Measured by the PARCA-R
2 Measured by the Strengths and Difficulties Questionnaire for 2-4 Year Olds
3 Measured by the Modified Checklist for Autism in Toddlers, Revised
4 Measured by the TNA-AZL Preschool Children Quality of Life Questionnaire
For more information on implementing this standard set, please click on the button below:
Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.
Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Working Group Chair | Andreas Flemmer | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich Research Fellow | Esther Schouten | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich Research Fellow | Johanna Steckermeier | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich Project Manager | Jessily P. Ramirez | ICHOM Project Manager | Nick Sillett | ICHOM Research Associate | Christina Nielsen | ICHOM
Jeanie Cheong | Murdoch Children’s Research Institute
Kylie Pussell | Miracle Babies Foundation*
Alicia Matijasevich | Departamento de Medicina Preventiva, Faculdade de Medicina FMUSP, Universidade de São Paulo
Linda Johnston | University of Toronto
Jennifer Zeitlin | Inserm
Silke Mader | European Foundation for the Care of Newborn Infants (EFCNI) *
Selina Bentoom | African Foundation for Premature Babies and Neonatal Care*
Kojo Yeboah-Antwi | Father Thomas Alan Rooney Memorial Hospital
Eleni Vavouraki | Ilitominon *
Arti Maria | Dr. Ram Manohar Lohia Hospital
Ilein Bolaños González | Con Amor Vencerás*
Naira Pereyra | Hospital Star Medica Infantil
Jasper Been | Erasmus MC - Sophia Children’s Hospital
Republic of Ireland
Mandy Daly | Irish Neonatal Health Alliance*
Rashmi A. Mittal | KK Women’s and Children’s Hospital
James Webbe | Imperial College London
Dieter Wolke | University of Warwick
Haresh Kirpalani | Children's Hospital of Philadelphia
Josef Neu | University of Florida
Kunda Mutesu-Kapembwa | University Teaching Hospital/Women and Newborn Hospital, Neonatology Department