Webinar Series

Optimizing Digital Health Performance-based Contracts for Patient Outcomes

The Heart of the Matter: Transforming Congenital Heart Disease Care with ICHOM

Date: 23 September 2026
Time: 09:00 EST | 14:00 BST | 15:00 CEST & SAST
Duration: 90 minutes

Standardized outcome measurement is foundational to value-based, patient-centered congenital heart disease (CHD) care. Yet many pediatric and adult congenital cardiology programs still face practical barriers when integrating patient-reported outcomes and case-mix variables into routine workflows.

In this webinar, Boston Children’s Hospital (BCH) will share its real-world implementation of the ICHOM Congenital Heart Disease Set of Patient-Centered Outcome Measures, demonstrating how globally standardized outcomes can be adapted to local clinical and operational environments without increasing burden on patients or providers.

The session will explore BCH’s automated branching-logic intake, PROMs integration into internal dashboards, and the scalable regional implementation model developed through the New England Congenital Cardiology Collaborative (NECCA). Attendees will gain practical insights from multiple centers already piloting this approach across New England.

Why Attend?

This webinar moves beyond theory to show what successful CHD outcomes implementation looks like in practice.

Through real examples from BCH and NECCA partner sites, attendees will see how patient intake can be streamlined to a 5–7 minute experience, how PROMs data can be visualized for clinical use, and how centers with different levels of IT and research infrastructure can still participate.

The session will also directly address common concerns around survey burden, EMR integration, IRB approval, consent workflows, and scaling across multiple institutions.

Susan F. Saleeb, MD Director of Boston Operations for Ambulatory Cardiology, Boston Childrens Hospital

Kathy Jenkins, MD MPH, Senior Cardiologist, Department of Cardiology, Boston Children's Hospital, Professor of Pediatrics, Harvard Medical School

What You’ll Gain

  • A practical understanding of how Boston Children’s Hospital implemented the ICHOM CHD Set in a large congenital cardiology center
  • Clear examples of how branching logic can reduce patient burden and improve completion rates
  • Practical options for PROMs collection using REDCap and simplified workflows
  • Insight into how PROMs and case-mix data can support clinical decision-making and quality improvement
  • Practical guidance on IRB, consent, and cross-site operational workflows
  • A scalable roadmap for piloting the CHD Set at your own institution
  • Opportunities to join or initiate regional and national implementation collaboratives

Key Discussion points

  • Why standardized outcomes matter in CHD care today
  • BCH’s implementation journey and lessons learned
  • Short video walkthrough of the patient intake experience
  • PROMs dashboard visualization and use in clinical conversation
  • Vermont’s early patient engagement and adult CHD perspective
  • Connecticut’s IRB and REDCap consent integration process
  • Simplified implementation pathways for centers with limited resources
  • Technology and case-mix flexibility across institutions
  • Lessons from regional scale-up across Vermont, Connecticut, and Maine
  • Live Q&A plus an optional extended operational discussion session

Who Should Attend

  • Pediatric congenital cardiology programs
  • Adult congenital heart disease teams
  • Quality improvement leaders
  • Value-based healthcare and outcomes measurement teams
  • PROMs implementation specialists
  • Clinical researchers and registry teams
  • Members of national and regional congenital cardiology networks
  • Healthcare organizations exploring scalable, patient-centered outcomes implementation
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