Macular Degeneration | ICHOM – International Consortium for Health Outcomes Measurement
Macular Degeneration

Macular Degeneration

The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
Macular Degeneration

1 Endophthalmitis
2 Individual treatments received for macular degeneration
3 Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire
4 Presence of fluid, edema, or hemorrhage

© 2015 ICHOM. All rights reserved. When using this set of outcomes, or quoting therefrom, in any way, we solely require that you always make a reference to ICHOM as the source so that this organization can continue its work to define more standard outcome sets.

Team that developed this standard


Mark Gillies | University of Sydney


Kim Ramasamy | Aravind Eye Care System


Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University


Norfariza Ngah | Hospital Selayang
Dato Shankar*


Caroline Klaver | Erasmus Medical Center


Gemmy Cheung | Singapore National Eye Center


Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden


Daniel Barthelmes | University Hospital Zurich

United Kingdom

Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society

United States

Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University

*Patient representative

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Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors is available here:

Version 3.0.1: April 10th, 2017

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How to measure?

Interested in measuring the ICHOM Standard Set? Learn how to measure.

November 12, 2013