Completed & Harmonized

The ICHOM Set of Patient-Centered Outcome Measures for Venous Thromboembolism results from hard work by a group of leading healthcare providers, researchers, and patient representatives. It represents the outcomes that matter most to people (≥16 years old) with Pulmonary Embolism, Deep Vein Thrombosis, and other related conditions*. We urge all providers worldwide to start measuring these meaningful outcomes, which will guide them to improve their care quality.

  1. Measured using the PROMIS Scale v1.2 – Global Health, PEmb-QoL, and VEINES-QOL questionnaires
  2. Measured using the Post-VTE Functional Status Scale
  3. Measured using the PROMIS Short Form v2.0 – Pain Intensity – 3a
  4. Measured using the PEmb QoL and PROMIS Short Form v1.0 – Dyspnea Severity – 10a
  5. Measured through the question: “Are you satisfied with your VTE treatment?”
  6. Measured using the Anti-Clot Treatment Scale
  7. Measured using the PHQ-9 and GAD-7 questionnaires
  8. Measured through the question: “Have you experienced a change in your expectations, aspirations,
    values, or perspectives on life opportunities since the diagnosis of Venous Thromboembolism?”
  9. Measured using the Villalta Score
  10. Chronic Thromboembolic Pulmonary Disease
  11. Chronic Thromboembolic Pulmonary Hypertension

*Including anti-phospholipid syndrome, <3-month life expectancy, pregnancy-related VTE, and cancer-associated thrombosis

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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

PROJECT TEAM
Chair | F.A. (Erik) Klok | Leiden University Medical Center
Chair | Stephen Black | King’s College London
Research Fellow | Cindy de Jong | Leiden University Medical Center
Research Fellow | Adam Gwozdz | King’s College London
Director of Outcomes Research | Luz Fialho | ICHOM
Project Manager | Theerawich (Will) Likitabhorn | ICHOM
Research Associate | Frieda Sossi | ICHOM
Research Associate | Paula Blancarte Jaber | ICHOM

AUSTRIA
Cihan Ay | Clinical Division of Haematology and Haemostaseology, Medical University of Vienna

BRAZIL
Marcelo Basso Gazzana | Hospital Moinhos de Vento; ANAHP

CANADA
Kerstin de Wit | Queen’s University; McMaster University
Jean-Philippe Galanaud | Sunnybrook Health Sciences Centre
Nicole Langlois | Ottawa Hospital Research Institute

DENMARK
Anette Arbjerg Højen | Aalborg University

FRANCE
Cécile Tromeur | CHU Brest; GETBO, Université de Bretagne Occidentale; F-CRIN INNOVTE, Saint Étienne
Laurent Bertoletti | CHU de St-Etienne; Université Jean-Monnet, SAINBIOSE; F-CRIN INNOVTE, Saint Étienne

THE NETHERLANDS
Arina Ten Cate-Hoek | Maastricht University Medical Centre
Esther Nossent | Amsterdam University Medical Centre Noa Smolenaars*

PERU
Paula Ponce de León Lovatón | Clínica San Felipe – Red SANNA

SPAIN
Juan Arcelus | University of Granada Medical School

SWEDEN
Eli Westerlund | Department of Clinical Sciences, Karolinska Institutet; Danderyd Hospital

SWITZERLAND
Helia Robert-Ebadi | Geneva University Hospitals Stefano Barco | University Hospital Zurich

TAIWAN
Kang-Ling Wang | Taipei Veterans General Hospital

UNITED KINGDOM
Alexander Cohen | Guy’s and St. Thomas’ Hospital; King’s College London
Mark Toshner | University of Cambridge
Julie Bayley* | University of Lincoln
Simon Noble | Marie Curie Palliative Care Research Centre, Cardiff University

UNITED STATES
Jean M. Connors | Brigham and Women’s Hospital, Harvard Medical School
Mark H. Meissner | University of Washington
Nicos Labropoulos | Stony Brook Hospital
Rachel P. Rosovsky | Massachusetts General Hospital, Harvard Medical School
William R. Auger | University of California, San Diego
Erin H. Murphy | Atrium Health

TEAM THAT FACILITATED THE UPDATE OF THIS SET AS PART OF THE CARDIOMETABOLIC FAMILY UPDATES INITIATIVE:

Elena Arbelo | Hospital Clínic Barcelona
Menno Huisman | Leiden University
Andreas Bollman | Heart Centre Leipzig
Benjamin Steinberg | University of Utah School of Medicine
John Beltrame | University of Adelaide
Tom Lumbers | University College London
Cristina García Ulloa | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Andrew Pumerantz | WesternU, Population Health Science
Sergio Hernández | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Søren Skovlund | Evidera
Mark Peyrot | Loyola University Maryland
Magdalena Walbaum | London School of Economics and Political Science
Erik (F.A.) Klok | Leiden University
Albertino Damasceno | Eduardo Mondlane University
Camila de Menezes Succi | Dasa Hospitals
Jana Nano | Helmholtz Zentrum München
Kevin Veen | Erasmus Medical Centre
Cindy de Jong | Leiden University
Tim Benson* | Nile Health

* Patient Representative

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