The ICHOM team is currently developing a Set of Patient-Centered Outcomes Measures for Bladder Cancer, prioritizing patient-centered outcomes measurement for bladder cancer patients to bring forth ground-breaking improvements in how bladder cancer outcomes are measured and evaluated, ultimately enhancing patient care globally.
This initiative aims to enhance the global measurement and assessment of bladder cancer. The recruitment of clinical experts and patient representatives for the Working Group is in progress.
The sole requirements for joining the Working Group are:

Having the ability to participate in teleconference calls in English every 4-6 weeks, lasting 1.5-2 hours, which necessitates a stable internet connection or the capability to dial in via telephone.
Showing an interest in co-producing research (although this is not mandatory, and ICHOM will ensure that participants fully comprehend the process before and during their involvement).

The roles and responsibilities of Working Group members include:

• Committing 2-4 hours per month.
• Attending and actively participating in 1.5-hour Working Group calls.
• Contributing to call content based on personal expertise and experience.
• Completing post-call surveys promptly.
• Providing feedback for academic publications, flyers, and reference guides.
• Being acknowledged as a named author in academic publications.
• Advocating for the Set at conferences and other public platforms.

We express our deep appreciation for the financial backing provided by our sponsors of the Set, with whom contractual arrangements are currently being finalized.

To participate in the ICHOM Bladder Cancer Working Group and shape the future of bladder cancer care, please email ICHOM Project Manager, Christina Nielsen, at c.nielsen@ichom.org