Completed
The ICHOM Set of Patient-Centered Outcome Measures for Kidney Stones is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Kidney Stones. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
- The Wisconsin Quality of Life Questionnaire (WISQOL) measuring functioning, emotional well-being, gastrointestinal tract symptoms, urinary symptoms, health-related quality of life, and pain.The Visual Analogue Scale measuring post-operative pain
- The PROMIS 6b Pain Interference measuring pain
- The 10-item LURN-Symptom Index (LURN SI-10) measuring urinary symptoms
- The Canadian Endourology Group Stent Symptom Score (CEGSSS) measuring stent symptoms
- Patient Experience including patient understanding of kidney stones management
- Medical Encounters including unplanned care and length of hospital stay
- Complications and Adverse Events including adverse effects of drugs and medical management and surgical complications
- Treatment Success including stone free status, need for additional procedures and post-treatment stone size/volume
- Survival including stone event free survival and death relating to kidney stones
- Patient experience including patient understanding of kidney stones management
Our sponsors
*Additional Sponsor: Coloplast sponsorship through an investigator-initiated study grant
Team that developed this set
Brazil
George Arnold | Hospital Ernesto Dornelles
Talita Salani | Brazilian Society of Nephrology
Alessandro Correa | Patient Representative
Cinthia Kruger Sobral Vieira | Hospital Ernesto Dornelles
Canada
Ben Chew | University of British Columbia
China
Steffi Yuen | The Chinese University of Hong Kong
Colombia
Catalina Solano | EAU
Denmark
Palle Jörn Sloth Osther | University of Southern Denmark
Egypt
Ahmed el Nahas | Mansoura University
Greece
Vasiliki Vakouftsi | Greek Patient’s Society
India
Maalvika Bhuvansunder | Generation Patient
Ireland
Derek Hennessey | Mercy University Hospital Cork
Doreen Fenton | Patient Representative
Helen Richards | Mercy University Hospital Cork
Italy
Daniele Castellani | Universita Politecnica Delle Marche
Mexico
Eduardo Ramírez Butanda | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Netherlands
Willem Jan Bos | Leiden University Medical Centre
New Zealand
George Arnold | Southern Cross Health Society
Saudi Arabia
Wissam Kamal | Jeddah Saudi Arabia
Singapore
Vineet Gauhar | Ng Teng Fong General Hospital
South Africa
Chevon Clark | National Renal Care
Tintswalo Brenda Mahlaola | University of Johannesburg
Turkey
Kemal Sarica | International Alliance of Uroloithiasis
UAE
Saf Naqvi | Imperial College London Diabetes Centre, Abu Dhabi
UK
Anju Devianee Keetharuth | University of Sheffield
David Wheeler | University College London
USA
Casey Dauw | University of Michigan
Jason Howard | Patient Representative
Joshua Stern | Intermountain Health
Kim Hollander | The Oxalosis and Hyperoxaluria Foundation
Kristi Ouimet | Caregiver Representative
Kristina Penniston | University of Wisconsin School of Medicine and Public Health
Melanie Betz | The Kidney Dietitian
Patrick Bryan | Tomorrow Health, Patient Representative
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