The ICHOM Set of Patient-Centered Outcome Measures for Paediatric Facial Palsy is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Paediatric Facial Palsy. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Evaluated via eFACE
  2. Tracked via FACE-QKIDS – Appearance of the face
  3. Evaluated via eating and drinking questions
  4. Evaluated via speech questions
  5. Tracked via Visual Analogue Scale
  6. Evaluated via Snellen Chart
  7. Evaluated via ocular symptoms questions
  8. Tracked via PROMIS Paediatric Global Health
  9. Tracked via PROMIS Peer-Relationships
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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

Chair | Adriaan Grobbelaar | Royal Free Hospital
Research Fellow | Daniel Butler | Imperial NHS Foundation Trust
Core Working Group Member | Tessa Hadlock | Harvard Medical School
Core Working Group Member | Gregory Borschel SickKids
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM

Christopher Coombs | Southern Plastic Surgery

Jocelyne Copeland | SickKids

Sinikka Suominen | Helsinki Uniersity Hospital

Akihiko Takushima | Kyorin University Hospital

Alexander Cárdenas Mejía | Hospital Dr. Manuel Gea González
Evangelina Vazquez Curiel* | Patients for Patient Safety

Teresa González Otero | Hospital La Paz

Louise Graham* | Patient Representative
Raman Malhotra | Queen Victoria Hospital

Faye Wachs | California State Polytechnic University Pomona
Jacqueline DIels | University of Wisconsin Hospital and Clinics
Kathleen Bogart | Oregon State University Lisa Ishii | Johns Hopkins Hospital
Lisa McKinley* | Facial Paralysis and Bell’s Palsy Foundation
Mara Robinson | Massachusetts Eye and Ear Infirmary

*Patient representative

Are you implementing ICHOM Sets?

If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:

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Implementation Map

We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.

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