Completed

The ICHOM Set of Patient-Centered Outcome Measures for Paediatric Facial Palsy is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Paediatric Facial Palsy. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Evaluated via eFACE
  2. Tracked via FACE-QKIDS – Appearance of the face
  3. Evaluated via eating and drinking questions
  4. Evaluated via speech questions
  5. Tracked via Visual Analogue Scale
  6. Evaluated via Snellen Chart
  7. Evaluated via ocular symptoms questions
  8. Tracked via PROMIS Paediatric Global Health
  9. Tracked via PROMIS Peer-Relationships

Implementation Resources

Manuscript
Flyer

Team that developed this set

PROJECT TEAM
Chair | Adriaan Grobbelaar | Royal Free Hospital
Research Fellow | Daniel Butler | Imperial NHS Foundation Trust
Core Working Group Member | Tessa Hadlock | Harvard Medical School
Core Working Group Member | Gregory Borschel SickKids
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM

AUSTRALIA
Christopher Coombs | Southern Plastic Surgery

CANADA
Jocelyne Copeland | SickKids

FINLAND
Sinikka Suominen | Helsinki Uniersity Hospital

JAPAN
Akihiko Takushima | Kyorin University Hospital

MEXICO
Alexander Cárdenas Mejía | Hospital Dr. Manuel Gea González
Evangelina Vazquez Curiel* | Patients for Patient Safety

SPAIN
Teresa González Otero | Hospital La Paz

UNITED KINGDOM
Louise Graham* | Patient Representative
Raman Malhotra | Queen Victoria Hospital

UNITED STATES
Faye Wachs | California State Polytechnic University Pomona
Jacqueline DIels | University of Wisconsin Hospital and Clinics
Kathleen Bogart | Oregon State University Lisa Ishii | Johns Hopkins Hospital
Lisa McKinley* | Facial Paralysis and Bell’s Palsy Foundation
Mara Robinson | Massachusetts Eye and Ear Infirmary

*Patient representative

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