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ICHOM ASD Set of Patient-Centered Outcome Measures Webinar
Our webinar on Autism Spectrum Disorder took place on 4th October 2021 and presented the newly launched ASDSS. The event included a discussion around the project’s inception, ASDSS process, the final Set of Patient-Centered Outcome Measures, implementation of the standard on a global scale and how this will affect people with autism.
The recording of this webinar is available to view by clicking the button below:
The ICHOM Set of Patient-Centered Outcome Measures for Autism Spectrum Disorders is the result of hard work by a group of leading researchers, psychologists, behavioural analysts, and service user representatives. It represents the outcomes that matter most to children (over the age of 18 months) and adults with autism spectrum disorders. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their service users.
Track A (recommends tools with cost associated with them to match existing tools in the current reimbursement models in North America)
1 Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
2 Tracked via the Social Responsiveness Scale (SRS)
3 Tracked via the Vineland Behavior Scales (VABS)
4 Tracked via the Preferences for Activities of Children (PAC)
5 Tracked via the Child and Family Quality of Life (CFQL-2)
6 Tracked via the McMaster Family Assessment Device
7 Tracked via the Positive and Negative Affect Scale (PANAS / PANAS – C)
8 Tracked via the Child Behavior Checklist (CBCL)
9 Tracked via the Brief Infant Sleep Questionnaire (BISQ)
Track B (recommends tools that are free or have a low cost, and can be used in any healthcare system)
A Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
B Tracked via the Vineland Behavior Scales (VABS)
C Tracked via the Patient Health Questionnaire-2 (PHQ-2)
D Tracked via the Child and Family Quality of Life (CFQL-2)
E Tracked via the McFamily Adaptability and Cohesion Evaluation Scale (FACES)
F Tracked via the Empathy Quotient (EQ)
G Tracked via the Pediatric Sleep Questionnaire (PSQ)
* Defined according to DSM-5 and ICD-11
All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.
Team that developed this set
PROJECT TEAM
Chair | Dr. Ivy Chong |
Research Fellow | Dr. Tim Kutta |
Project Managers | Alex Silkworth, Andria Joseph
Research Associates | Christiana Ilesanmi
THE WORKING GROUP CHINA
Diane Li | Ai You Foundation
Weihe Huang | Creating Behavioral + Educational Momentum
INDIA
Merry Baura | Action for Autism
Sudhanshu Grover | Action for Autism
Shaneel Mukerji | India Autism Center & MHF Kolkata
PORTUGAL
Claudia Bandeira de Lima | Institute for Evidence Based Healthcare at University of Lisbon School and Medicine
RUSSIA
Svyatoslav Dovbnya
SPAIN
Javier Virues | Universidad Autónoma de Madrid
UNITED KINGDOM
Neil Martin | Behavior Analyst Certification Board (BACB)
UNITED STATES
Amber Valentino | Trumpet Behavioral Health
Braden Josephson | Centria Healthcare
Dennis Dixon | Center for Autism and Related Disorders
Ellen Fittro | InBloom Autism Services
Hanna Rue | LEARN Behavioral
Johnathan Tarbox | University of Southern California; FirstSteps for Kids
Kim Strunk | Hopebridge
Kristine Rodriguez | Autism Learning Partners
Leslie Morrison | Easterseals Southern California
Peter Gerhardt | The EPIC Programs
Sandra Willis | Global Mental Health Lab, Columbia University
Yagnesh Vadgama | Magellan Health
Are you implementing ICHOM Sets?
If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:
Implementation Map
We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.