Completed
The ICHOM Set of Patient-Centered Outcome Measures for Liver Disease is the result of hard work by a group of leading physicians, academics, and patients. It is our recommendation of the outcomes that matter most to people living with liver disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
- Reported using any of the following: EuroQol-5D-5L (EQ-5D-5L), Veterans RAND 12 (VR-12), Short Form-12 (SF-12), PROMIS Global Health – 10 v1.2
- Reported using PROMIS Satisfaction with Sex Life
- Reported using Liver Frailty Index (LFI)
- Including Neurocognitive Function (which is reported using PROMIS Cognitive Function)
- Including Virologic Control for HBV, HCV and HDV, Virologic Response, and Viral Clearance and Control
- Including HCC recurrence, Tumor Status, and Response
- Including Acute-on-Chronic Liver Failure and Multi-Organ Failure
- Including Emergency Department Visit, Hospitalization, and ICU admission
- Including End Stage Liver Disease, Frequency of Paracentesis for Ascites, Hepatic Encephalopathy, and Variceal Bleeding
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Team that developed this set
Co-Chairs
Philip Newsome | King’s College London, UK
Jia Fan | Zhongshan Hospital, Fudan University, China
Gao-Jun Teng | Zhongda Hospital, Southeast University, China
Research Fellow
Akanksha Singh | NHS, UK
Australia
Jacob George | University of Sydney
Azerbaijan
Gulnara Aghayeva | Sechenov Medical University (Baku branch)
Brazil
Fabio Silveira | Digestive and Organ Transplant Center
Canada
Michael Betel*
China
Jin-Lin Hou | Nanfang Hospital, Southern Medical University
Hui-Chuan Sun | Zhongshan Hospital, Fudan University
Wen-Hong Zhang | National Infectious Disease Medical Center, Huashan Hospital
Xiao-Long Qi | Zhongda Hospital, Southeast University
Yun-Fan Sun | Liver Cancer Institute, Fudan University
Malaysia
Chan Wah Kheong | University of Malaya
Myanmar
Khin Pyone Kyi | Myanmar Liver Foundation
North Macedonia
Milan Mishkovikj*
Oman
Said Al-Busafi | Sultan Qaboos University
Philippines
Diana Payawal | Fatima University Medical Center, Cardinal Santos Medical Center
Portugal
Sofia Carvalhana | University of Lisbon
Singapore
Mark Muthiah | National University Hospital
South Africa
C. Wendy Spearman | University of Cape Town
South Sudan
Emmanuel Gbudue*
Spain
Juan Pericas | Vall d’Hebron University Hospital
The Gambia
Gibril Ndow | MRC Unit The Gambia, LSHTM
Uganda
Ponsiano Ocama | Makerere University
USA
Andrew Moon | University of North Carolina
George Arnold*
Jennifer Berg*
UK
Carl Lander*
Emmanuel Tsochatzis | CL Institute for Liver and Digestive Health
Katherine Caddick | NHS
* Patient Representative
