The ICHOM Set of Patient-Centered Outcome Measures for Neurodevelopmental Disorders is the result of hard work by a group of leading clinicians, researchers, and patients. It is our recommendation of the outcomes that matter most to patients with neurodevelopmental disorders. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Includes ADHD symptoms.
  2. Includes Language Difficulies, Social (Pragmatic) Communication Difficulties, Fluency Difficulties, and Speech Sound Difficulties.
  3. Includes Vocal and Motor Tic Frequency and Severity, Fine Motor Skills, Gross Motor Skills, and Coordination.
  4. Includes Reading Accuracy, Reading Comprehension, Global Maths Ability, and Global Writing Ability.
  5. The Working Group has not recommended an outcome measure at this time as no appropriate measure was found.
  6. Tracked via KIDSCREEN-10
  7. Tracked via Family Strain Index
  8. Tracked via Affective Reactivity Index
  9. Tracked via Children’s Sleep Habits Questionnaire
  10. Tracked via Swanson, Nolan, and Pelham Rating Scale (Oppositional Defiant Disorder scale)
  11. Tracked using the ICHOM Pediatric Depression & Anxiety Set
  12. Tracked using the ICHOM Autism Spectrum Disorders Set

Implementation Resources

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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

Chair | David Coghill | University of Melbourne
Research Fellow | Melissa Mulraney | ISN Psychology
Project Manager | Andria Joseph | ICHOM
Project Manager, Research Associate | Umanga de Silva | ICHOM
Director | Luz Sousa Fialho | ICHOM

Adam Guastella | Child and Youth Mental Health
Caroline Tehan*
Iain Dutia | Australian Catholic University
Jonathan Payne | Murdoch Children’s Research Institute
Mark Bellgrove | Turner Institute for Brain and Mental Health and School of Psychological Sciences, Monash University
Natalie Munro | The University of Sydney
Tamasin Meller | Child Development Service

Guilherme V. Polanczyk | University of São Paulo Medical School

Peter Szatmari | Hospital for Sick Children, Toronto

Hong Kong
Phyllis Chan | Queen Mary Hospital

Tobias Banaschewski | Central Institute of Mental Health

Peter Nagy | Bethesda Children’s Hospital Budapest

Susan Wamithi | Aga Khan University Hospital

Sidra Kaleem | Aga Khan University Hospital

Cláudia Bandeira de Lima | Institute for Evidence Based Healthcare at University of Lisbon School and Medicine

Sweden and Finland
Juulia Järvdike | WeMind and WeMind Suomi Oy

United Kingdom
Alison Clink*
Eileen Daly | King’s College London
Emily Simonoff | King’s College London
Mark Lovell | Royal College of Psychiatrists
Melissa Gladstone | University of Liverpool
Samuele R. Chamberlain | University of Southampton
Samuele Cortese | University of Southampton

United States
Ivy Chong | The May Institute, Inc
Jeffrey Newcorn | Icahn School of Medicine at Mount Sinai
Karin Walsh | Children’s National Research Institute
Stephen V. Faraone | SUNY Upstate Medical University

*Patient Representative

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