Chronic Kidney Disease

The standard set

The ICHOM Standard Set for Chronic Kidney Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Chronic Kidney Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Pre-RRT Patients

2 Haemodialysis Patients

3 Peritoneal Dialysis Patients

4 Transplant Patients

5 Conservative Care Patients


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard

Project Team

Chair | Willem Jan W Bos | St. Antonius Hospital
Research Fellow | Wouter Verberne | St. Antonius Hospital
Project Leader | Zofia Das-Gupta | ICHOM
Vice-President of Standardisation | Charlotte Roberts | ICHOM


Andrea Stopper | ERCPA
Wim van Biesen | University of Ghent


Markus Ketteler | Klinikum Coburg


Guillermo Garcia-Garcia | University of Guadalajara


J.A.J. (Hans) Bart* | Dutch Kidney Patient Association
Kitty J. Jager | ERA-EDTA Registry, University of Amsterdam
Marc H. Hemmelder | Dutch Renal Registry
Turkan Terkivatan | Erasmus Medical Center


Eduardo Parra Moncasi | Reina Sofia Hospital Tudela


Chih-Wei Yang | Chang Gung Memorial Hospital Linkou

United Arab Emirates

Muhamed Al Rohani | Dibba Hospital

United Kingdom

David C. Wheeler | University College London
Elizabeth Gibbons | University of Oxford

United States

Andrew S. Allegretti | Massachusetts General Hospital
Katherine R. Tuttle | Providence Medical Research Center, University of Washington
Laurie Konowitz*

*Patient representative

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