The standard set
The ICHOM Standard Set for Inflammatory Arthritis is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Multiple outcome instruments will be linked to domain-specific common metrics, using item response theory
2 Combination of subjective and objective measures: acute phase response, joint assessment, body surface area & enthesitis and dactylitis (PsA)
Download the flyer
A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide
A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary
An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Team that developed this standard
Project team
Chair | Harald Vonkeman | Medisch Spectrum Twente & University of Twente
Co-Chair | Mart van de Laar | Medisch Spectrum Twente & University of Twente
Research Fellow | Martijn Oude Voshaar | University of Twente
Project Leader | Zofia Das-Gupta | ICHOM
Argentina
Enrique Soriano | Instituto Universitario Hospital Italiano de Buenos Aires
Brazil
Geraldo Pinheiro | Rio de Janeiro State University
France
Laure Gossec | Pitié-Salpêtrière Hospital
Hong Kong
Jeffrey Chau*
Israel
Merav Lidar | Sheba Medical Center
Netherlands
Angelique Weel | Maasstad Hospital
Annelies Boonen | Maastricht UMC
Johannes Bijlsma | EULAR
Marieke Voshaar*
Maarten de Wit*
Nico Wulffraat | UMCU
New Zealand
William Taylor | University of Otago
Singapore
Katy Ying Ying Leung | Duke-NUS Graduate Medical School
South Africa
Girish Mody | Nelson Mandela School of Medicine
Sweden
Christina Opava | Karolinska Institutet
Sofia Ernestam | Karolinska Institutet
Switzerland
Delphine Courvoisier | University Hospitals of Geneva
United Kingdom
Benjamin Ellis | Imperial College Healthcare NHS Trust
Mwidimi Ndosi | University of the West of England
United States
Christine Hale*
Jeffrey Curtis | University of Alabama at Birmingham
Jennifer Horonjeff*
Kaleb Michaud* | University of Nebraska Medical Center & National Data Bank for Rheumatic Diseases
Philip Mease | University of Washington
*Patient representative
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