The ICHOM Standard Set for Inflammatory Arthritis is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Multiple outcome instruments will be linked to domain-specific common metrics, using item response theory
2 Combination of subjective and objective measures: acute phase response, joint assessment, body surface area & enthesitis and dactylitis (PsA)
A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Chair | Harald Vonkeman | Medisch Spectrum Twente & University of Twente
Co-Chair | Mart van de Laar | Medisch Spectrum Twente & University of Twente
Research Fellow | Martijn Oude Voshaar | University of Twente
Project Leader | Zofia Das-Gupta | ICHOM
Enrique Soriano | Instituto Universitario Hospital Italiano de Buenos Aires
Geraldo Pinheiro | Rio de Janeiro State University
Laure Gossec | Pitié-Salpêtrière Hospital
Merav Lidar | Sheba Medical Center
Angelique Weel | Maasstad Hospital
Annelies Boonen | Maastricht UMC
Johannes Bijlsma | EULAR
Maarten de Wit*
Nico Wulffraat | UMCU
William Taylor | University of Otago
Katy Ying Ying Leung | Duke-NUS Graduate Medical School
Girish Mody | Nelson Mandela School of Medicine
Christina Opava | Karolinska Institutet
Sofia Ernestam | Karolinska Institutet
Delphine Courvoisier | University Hospitals of Geneva
Benjamin Ellis | Imperial College Healthcare NHS Trust
Mwidimi Ndosi | University of the West of England
Jeffrey Curtis | University of Alabama at Birmingham
Kaleb Michaud* | University of Nebraska Medical Center & National Data Bank for Rheumatic Diseases
Philip Mease | University of Washington
To receive updates about new versions and opportunities to implement this standard set, please submit your details below