Inflammatory Arthritis

The standard set

The ICHOM Standard Set for Inflammatory Arthritis is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Multiple outcome instruments will be linked to domain-specific common metrics, using item response theory

2 Combination of subjective and objective measures: acute phase response, joint assessment, body surface area & enthesitis and dactylitis (PsA)


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard

Project team

Chair | Harald Vonkeman | Medisch Spectrum Twente & University of Twente
Co-Chair | Mart van de Laar | Medisch Spectrum Twente & University of Twente
Research Fellow | Martijn Oude Voshaar | University of Twente
Project Leader | Zofia Das-Gupta | ICHOM


Enrique Soriano | Instituto Universitario Hospital Italiano de Buenos Aires


Geraldo Pinheiro | Rio de Janeiro State University


Laure Gossec | Pitié-Salpêtrière Hospital

Hong Kong

Jeffrey Chau*


Merav Lidar | Sheba Medical Center


Angelique Weel | Maasstad Hospital
Annelies Boonen | Maastricht UMC
Johannes Bijlsma | EULAR
Marieke Voshaar*
Maarten de Wit*
Nico Wulffraat | UMCU

New Zealand

William Taylor | University of Otago


Katy Ying Ying Leung | Duke-NUS Graduate Medical School

South Africa

Girish Mody | Nelson Mandela School of Medicine


Christina Opava | Karolinska Institutet
Sofia Ernestam | Karolinska Institutet


Delphine Courvoisier | University Hospitals of Geneva

United Kingdom

Benjamin Ellis | Imperial College Healthcare NHS Trust
Mwidimi Ndosi | University of the West of England

United States

Christine Hale*
Jeffrey Curtis | University of Alabama at Birmingham
Jennifer Horonjeff*
Kaleb Michaud* | University of Nebraska Medical Center & National Data Bank for Rheumatic Diseases
Philip Mease | University of Washington
*Patient representative

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