Completed
The ICHOM Set of Patient-Centered Outcome Measures for Kidney Stones is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Kidney Stones. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
- The Wisconsin Quality of Life Questionnaire (WISQOL) measuring functioning, emotional well-being, gastrointestinal tract symptoms, urinary symptoms, health-related quality of life, and pain.</li?
- The Visual Analogue Scale measuring post-operative pain
- The PROMIS 6b Pain Interference measuring pain
- The 10-item LURN-Symptom Index (LURN SI-10) measuring urinary symptoms
- The Canadian Endourology Group Stent Symptom Score (CEGSSS) measuring stent symptoms
- Patient Experience including patient understanding of kidney stones management
- Medical Encounters including unplanned care and length of hospital stay
- Complications and Adverse Events including adverse effects of drugs and medical management and surgical complications
- Treatment Success including stone free status, need for additional procedures and post-treatment stone size/volume
- Survival including stone event free survival and death relating to kidney stones
- Patient experience including patient understanding of kidney stones management
Our sponsors
*Additional Sponsor: Coloplast sponsorship through an investigator-initiated study grant
Team that developed this set
Brazil
Talita Salani | Unimed
Cinthia Kruger Sobral Vieira | Brazilian Society of Nephrology
Canada
Ben Chew | University of British Columbia
China
Steffi Yuen | The Chinese University of Hong Kong
Colombia
Catalina Solano | Uroclin, Tenon Hospital, Sorbonne University
Denmark
Palle Jörn Sloth Osther | Lillebaelt Hospital, University Hospital of Southern Denmark
Egypt
Ahmed el Nahas | Mansoura University
Greece
Vasiliki Vakouftsi | Hellenic Society of Crohn’s Disease’s and Ulcerative Colitis’ Patients, Greek Patients’ Association, Patient Representative
India
Maalvika Bhuvansunder | Generation Patient, Patient Representative
Ireland
Derek Hennessey | Mercy University Hospital
Helen Richards | Mercy University Hospital, University of Limerick
Italy
Daniele Castellani | Libera Università Mediterranea “Giuseppe Degennaro”; “F. Miulli” General Hospital
Mexico
Eduardo Ramírez Butanda | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Sociedad Mexicana de Nutrición y Endocrinología
Netherlands
Willem Jan Bos | Leiden University Medical Centre, St. Antonius Hospital
New Zealand
George Arnold | Patient Representative
Saudi Arabia
Wissam Kamal | King Fahd Hospital, Saudi Commission for Health Specialities
Singapore
Vineet Gauhar | Ng Teng Fong General Hospital , National University Hospital System
South Africa
Chevon Clark | National Renal Care
Tintswalo Brenda Mahlaola | University of Johannesburg, Health Professions Council of South Africa
Turkey
Kemal Sarica | University of Health Sciences Hamidiye Medical School, Biruni University Medical School
UAE
Saf Naqvi | Imperial College London Diabetes Centre, Abu Dhabi
UK
Anju Devianee Keetharuth | University of Sheffield
David Wheeler | University College London, Royal Free London NHS Foundation Trust
USA
Karen Akerson | Patient Representative
Melanie Betz | The Kidney Dietitian
Patrick Bryan | Tomorrow Health, Patient Representative
Casey Dauw | University of Michigan
Kim Hollander | The Oxalosis and Hyperoxaluria Foundation
Jason Howard | Patient Representative
Kristi Ouimet | Caregiver Representative
Kristina Penniston | University of Wisconsin School of Medicine and Public Health, University of Wisconsin Hospital and Clinics, CAIRIBU Interactions Core
Joshua Stern | Intermountain Health, AUA Research Appropriations Committee, Kidney Stone Collaborative
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