Completed & Harmonized

The ICHOM Set of Patient-Centered Outcome Measures for Heart failure is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Heart failure. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Includes dyspnoea, fatigue and tiredness, disturbed sleep, and peripheral oedema.
  2. Includes health-related quality of life, maximum physical exertion.
  3. Includes depression and anxiety, confidence and self-esteem.
  4. Includes admissions, appointments.

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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

AUSTRALIA
John Beltrame | Queen Elizabeth Hospital
Tom Marwick | Menzies Institute for Medical Research
Christopher Reid | Monash University

BRAZIL
Sabrina Bernardez | Hospital do Coração
Salvador Paiva* | Association Friends of the Heart

CANADA
Daniel Burns | University Hospital Ontario

GREECE
Gerasimos Fillipatos | European Society of Cardiology

NETHERLANDS
Arno Hoes | University Medical Centre Utrecht
Luuk Otterspoor | Meetbaar Beter (ADD)

SINGAPORE
Carolyn Lam Su Ping | National University Heart Centre

SOUTH AFRICA
Karen Sliwa | Hatter Institute for Cardiovascular Research Africa

SPAIN
Marisa Crespo-Leiro | European Society of Cardiology

SWEDEN
Hans Persson | Karolinska Institutet

UNITED KINGDOM
Neil Churchill | NHS England
Suzanna Hardman | British Society for Heart Failure
Tina Kinsella* | Cardiomyopathy UK
Mike Knapton | British Heart Foundation
Theresa McDonagh | National Institute for Cardiovascular Outcomes Research (NICOR)
Hugh McIntyre | National Institute for Health Care Excellence
Richard Mindham* | Cardiomyopathy UK
Jillian Riley | Imperial College London
Vicky Parker | Camden Clinical Commissioning Group (ADD)

UNITED STATES
Mariell Jessup | Penn Heart and Vascular Centre
Frederick Masoudi | University of Colorado Hospital
Lynne Stevenson | Brigham and Women’s Hospital and Harvard Medical School

WALES
Stephen Hutchison | Aneurin Bevan Health Board

TEAM THAT FACILITATED THE UPDATE OF THIS SET AS PART OF THE CARDIOMETABOLIC FAMILY UPDATES INITIATIVE:

Elena Arbelo | Hospital Clínic Barcelona
Menno Huisman | Leiden University
Andreas Bollman | Heart Centre Leipzig
Benjamin Steinberg | University of Utah School of Medicine
John Beltrame | University of Adelaide
Tom Lumbers | University College London
Cristina García Ulloa | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Andrew Pumerantz | WesternU, Population Health Science
Sergio Hernández | Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán
Søren Skovlund | Evidera
Mark Peyrot | Loyola University Maryland
Magdalena Walbaum | London School of Economics and Political Science
Erik (F.A.) Klok | Leiden University
Albertino Damasceno | Eduardo Mondlane University
Camila de Menezes Succi | Dasa Hospitals
Jana Nano | Helmholtz Zentrum München
Kevin Veen | Erasmus Medical Centre
Cindy de Jong | Leiden University
Tim Benson* | Nile Health

* Patient Representative

Are you implementing ICHOM Sets?

If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:

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Implementation Map

We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.

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