The ICHOM Standard Set for Heart failure is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Heart failure. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Includes dyspnoea, fatigue and tiredness, disturbed sleep, and peripheral oedema.
2 Includes health-related quality of life, maximum physical exertion.
3 Includes depression and anxiety, confidence and self-esteem.
Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.
Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
John Beltrame | Queen Elizabeth Hospital
Tom Marwick | Menzies Institute for Medical Research
Christopher Reid | Monash University
Sabrina Bernardez | Hospital do Coração
Salvador Paiva* | Association Friends of the Heart
Daniel Burns | University Hospital Ontario
Gerasimos Fillipatos | European Society of Cardiology
Arno Hoes | University Medical Centre Utrecht
Luuk Otterspoor | Meetbaar Beter (ADD)
Carolyn Lam Su Ping | National University Heart Centre
Karen Sliwa | Hatter Institute for Cardiovascular Research Africa
Marisa Crespo-Leiro | European Society of Cardiology
Hans Persson | Karolinska Institutet
Neil Churchill | NHS England
Suzanna Hardman | British Society for Heart Failure
Tina Kinsella* | Cardiomyopathy UK
Mike Knapton | British Heart Foundation
Theresa McDonagh | National Institute for Cardiovascular Outcomes Research (NICOR)
Hugh McIntyre | National Institute for Health Care Excellence
Richard Mindham* | Cardiomyopathy UK
Jillian Riley | Imperial College London
Vicky Parker | Camden Clinical Commissioning Group (ADD)
Mariell Jessup | Penn Heart and Vascular Centre
Frederick Masoudi | University of Colorado Hospital
Lynne Stevenson | Brigham and Women's Hospital and Harvard Medical School
Stephen Hutchison | Aneurin Bevan Health Board
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