The ICHOM Set of Patient-Centered Outcome Measures for Preterm and Hospitalised Newborn Health is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to the parents of Preterm and Hospitalised Newborns. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

Patient Reported Outcome Measures (PROMs)

1 Measured by the PARCA-R

2 Measured by the Strengths and Difficulties Questionnaire for 2-4 Year Olds

3 Measured by the Modified Checklist for Autism in Toddlers, Revised

4 Measured by the TNA-AZL Preschool Children Quality of Life Questionnaire

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

Find Out More

Team that developed this set

Working Group Chair | Andreas Flemmer | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Esther Schouten | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Johanna Steckermeier | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Project Manager | Jessily P. Ramirez | ICHOM
Project Manager | Nick Sillett | ICHOM
Research Associate | Christina Nielsen | ICHOM

Jeanie Cheong | Murdoch Children’s Research Institute
Kylie Pussell | Miracle Babies Foundation *

Alicia Matijasevich | Departamento de Medicina Preventiva, Faculdade de Medicina FMUSP, Universidade de São Paulo

Linda Johnston | University of Toronto

Jennifer Zeitlin | Inserm

Silke Mader | European Foundation for the Care of Newborn Infants (EFCNI) *

Selina Bentoom | African Foundation for Premature Babies and Neonatal Care*
Kojo Yeboah-Antwi | Father Thomas Alan Rooney Memorial Hospital

Eleni Vavouraki | Ilitominon *

Arti Maria | Dr. Ram Manohar Lohia Hospital

Ilein Bolaños González | Con Amor Vencerás*
Naira Pereyra | Hospital Star Medica Infantil

Jasper Been | Erasmus MC – Sophia Children’s Hospital

Mandy Daly | Irish Neonatal Health Alliance*

Rashmi A. Mittal | KK Women’s and Children’s Hospital

James Webbe | Imperial College London
Dieter Wolke | University of Warwick

Haresh Kirpalani | Children’s Hospital of Philadelphia
Josef Neu | University of Florida

Kunda Mutesu-Kapembwa | University Teaching Hospital/Women and Newborn Hospital, Neonatology Department

*Patient Representative

Are you implementing ICHOM Sets?

If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:

View Survey

Implementation Map

We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.

Find Out More