The ICHOM Set of Patient-Centered Outcome Measures for Preterm and Hospitalised Newborn Health is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to the parents of Preterm and Hospitalised Newborns. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
Patient Reported Outcome Measures (PROMs)
1 Measured by the PARCA-R
2 Measured by the Strengths and Difficulties Questionnaire for 2-4 Year Olds
3 Measured by the Modified Checklist for Autism in Toddlers, Revised
4 Measured by the TNA-AZL Preschool Children Quality of Life Questionnaire
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All of the basic information you need to implement ICHOM Sets is available in the links above. However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems. This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.
Team that developed this set
Working Group Chair | Andreas Flemmer | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Esther Schouten | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Johanna Steckermeier | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Project Manager | Jessily P. Ramirez | ICHOM
Project Manager | Nick Sillett | ICHOM
Research Associate | Christina Nielsen | ICHOM
Jeanie Cheong | Murdoch Children’s Research Institute
Kylie Pussell | Miracle Babies Foundation *
Alicia Matijasevich | Departamento de Medicina Preventiva, Faculdade de Medicina FMUSP, Universidade de São Paulo
Linda Johnston | University of Toronto
Jennifer Zeitlin | Inserm
Silke Mader | European Foundation for the Care of Newborn Infants (EFCNI) *
Selina Bentoom | African Foundation for Premature Babies and Neonatal Care*
Kojo Yeboah-Antwi | Father Thomas Alan Rooney Memorial Hospital
Eleni Vavouraki | Ilitominon *
Arti Maria | Dr. Ram Manohar Lohia Hospital
Ilein Bolaños González | Con Amor Vencerás*
Naira Pereyra | Hospital Star Medica Infantil
Jasper Been | Erasmus MC – Sophia Children’s Hospital
REPUBLIC OF IRELAND
Mandy Daly | Irish Neonatal Health Alliance*
Rashmi A. Mittal | KK Women’s and Children’s Hospital
James Webbe | Imperial College London
Dieter Wolke | University of Warwick
Haresh Kirpalani | Children’s Hospital of Philadelphia
Josef Neu | University of Florida
Kunda Mutesu-Kapembwa | University Teaching Hospital/Women and Newborn Hospital, Neonatology Department
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