In Progress
The ICHOM Working Group (WG) for Liver Disease, composed of global patients and professionals, has now proposed a minimum set of health outcomes that matter to people with lived experience of liver disease. These outcomes aim to improve how healthcare is delivered to patients undergoing liver disease care.
To explore whether these outcomes are meaningful and reflect what people with lived experience find most important, we invite people with lived experience of liver disease to participate in the Patient Validation Survey. This survey is an opportunity to share your views on the relevance and importance of each proposed outcome. Your feedback will play a crucial role in shaping the WG’s final recommendations, ensuring the outcomes selected genuinely represent what is most important to liver disease patients. Please complete the survey here: https://ichom.co1.qualtrics.com/jfe/form/SV_cCvnDgLFhhsseAm
We currently have the ethical approvals to disseminate this survey in the UK, US and New Zealand.
If you have any questions about the ICHOM Liver Disease Set or Patient Validation Survey, please reach out to ICHOM Project Manager, Umanga de Silva, at u.desilva@ichom.org. More details can also be found in the recruitment flyer.
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