Inflammatory Bowel Disease

The standard set

The ICHOM Standard Set for Inflammatory Bowel Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It represents the outcomes that matter most to patients who have had Inflammatory Bowel Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Tracked via the IBD-Control

2 Tracked via the Manitoba IBD Index


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard


Andrew Kim | St Vincent’s Hospital Sydney


Séverine Vermeire | University Hospitals Leuven


Paulo Kotze | Cajuru University Hospital


ZhiHua Ran | Shanghai Jiaotong University School of Medicine


Brian Feagan | Western University


Marc Derieppe* | AFA


Axel Dignass | Agaplesion Markus Hospital


Rupa Banerjee | Asian Institute of Gastroenterology


Janette Gaarenstroom-Lunt | N-ECCO
C. Janneke van der Woude | Erasmus University Medical Center
Willem Bemelman | University of Amsterdam

South Korea

Suk-Kyun Yang | University of Ulsan

United Kingdom

Keith Bodger | University of Liverpool
Richard Driscoll | IBD2020
Ray Fitzpatrick | University of Oxford
Marian O’Connor | St Mark’s Hospital
Charlotte Roberts | ICHOM
Helen Terry | CCUK
Simon Travis | University of Oxford AHSN

United States

Peter Higgins | University of Michigan
Jillian Meissner* | CCFA
Bruce Sands | Icahn School of Medicine, Mount Sinai
Corey Seigel | Geisel School of Medicine at Dartmouth
Welmoed van Deen | UCLA Center for Inflammatory Bowel Diseases
Alandra Weaver | CCFA

*Patient representative

Stay up to date

To receive updates about this standard set, including new versions, please click on the box below.

View more standard sets

Atrial Fibrillation Image

Atrial Fibrillation

Cardiovascular and circulatory

ICHOM Sets of Patient-Centered Outcome Measures Diabetes Image


Diabetes, blood, and endocrine

Paediatric Facial Palsy

Congenital anomalies

Congenital Upper Limb Anomalies

Congenital anomalies