The standard set
The ICHOM Standard Set for Inflammatory Bowel Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It represents the outcomes that matter most to patients who have had Inflammatory Bowel Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Tracked via the IBD-Control
2 Tracked via the Manitoba IBD Index
Download the flyer
A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide
A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary
An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Team that developed this standard
Australia
Andrew Kim | St Vincent’s Hospital Sydney
Belgium
Séverine Vermeire | University Hospitals Leuven
Brazil
Paulo Kotze | Cajuru University Hospital
China
ZhiHua Ran | Shanghai Jiaotong University School of Medicine
Canada
Brian Feagan | Western University
France
Marc Derieppe* | AFA
Germany
Axel Dignass | Agaplesion Markus Hospital
India
Rupa Banerjee | Asian Institute of Gastroenterology
Netherlands
Janette Gaarenstroom-Lunt | N-ECCO
C. Janneke van der Woude | Erasmus University Medical Center
Willem Bemelman | University of Amsterdam
South Korea
Suk-Kyun Yang | University of Ulsan
United Kingdom
Keith Bodger | University of Liverpool
Richard Driscoll | IBD2020
Ray Fitzpatrick | University of Oxford
Marian O’Connor | St Mark’s Hospital
Charlotte Roberts | ICHOM
Helen Terry | CCUK
Simon Travis | University of Oxford AHSN
United States
Peter Higgins | University of Michigan
Jillian Meissner* | CCFA
Bruce Sands | Icahn School of Medicine, Mount Sinai
Corey Seigel | Geisel School of Medicine at Dartmouth
Welmoed van Deen | UCLA Center for Inflammatory Bowel Diseases
Alandra Weaver | CCFA
*Patient representative
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View more standard sets
Diabetes
Diabetes, blood, and endocrine
Paediatric Facial Palsy
Congenital anomalies
Congenital Upper Limb Anomalies
Congenital anomalies
Inflammatory Arthritis
Musculoskeletal
