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Inflammatory Bowel Disease

The standard set

The ICHOM Standard Set for Inflammatory Bowel Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It represents the outcomes that matter most to patients who have had Inflammatory Bowel Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Tracked via the IBD-Control

2 Tracked via the Manitoba IBD Index

Download the flyer

A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.

Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.

Data Dictionary

An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.

Team that developed this standard

Australia

Andrew Kim | St Vincent’s Hospital Sydney

Belgium

Séverine Vermeire | University Hospitals Leuven

Brazil

Paulo Kotze | Cajuru University Hospital

China

ZhiHua Ran | Shanghai Jiaotong University School of Medicine

Canada

Brian Feagan | Western University

France

Marc Derieppe* | AFA

Germany

Axel Dignass | Agaplesion Markus Hospital

India

Rupa Banerjee | Asian Institute of Gastroenterology

Netherlands

Janette Gaarenstroom-Lunt | N-ECCO
C. Janneke van der Woude | Erasmus University Medical Center
Willem Bemelman | University of Amsterdam

South Korea

Suk-Kyun Yang | University of Ulsan

United Kingdom

Keith Bodger | University of Liverpool
Richard Driscoll | IBD2020
Ray Fitzpatrick | University of Oxford
Marian O’Connor | St Mark’s Hospital
Charlotte Roberts | ICHOM
Helen Terry | CCUK
Simon Travis | University of Oxford AHSN

United States

Peter Higgins | University of Michigan
Jillian Meissner* | CCFA
Bruce Sands | Icahn School of Medicine, Mount Sinai
Corey Seigel | Geisel School of Medicine at Dartmouth
Welmoed van Deen | UCLA Center for Inflammatory Bowel Diseases
Alandra Weaver | CCFA

*Patient representative

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