Global Genes

Global Genes was built on the belief that rare disease advocates sharing their stories is the crucial first step to improving life with a rare disease.

Wherever your advocacy efforts are focused, telling your story will help you find your allies and together we can make better things happen – from better medical care to greater awareness to advancing research for treatments. Global Genes is a 501(c)(3) non-profit organization dedicated to providing resources and support for rare diseases for patients and families globally through a continuum of services to accelerate their path from early support, awareness, and advocacy.