Bringing the Voice of the Patient to the
UK private health market

Join other leaders in the UK private health sector to co-create a better reimbursement model, based on patient outcomes, not processes.

The global value crisis in healthcare – spending grows unsustainably, while clinical practice and outcomes continue to vary significantly – is no less acute in the UK private health market.

Find out how to use patient-reported data to better manage costs and improve the care outcomes of patients, through measuring the outcomes that matter most to patients, in a standardized way, and comparing these outcomes across care providers. This is the “Voice of the Patient” initiative, and we invite you to join us on 26th February 2025 to find out more about this practical approach to Value-Based Care.

Background

Solving the global value crisis in healthcare requires us to reorient and focus more on the health outcomes achieved for patients, as reported, and experienced by patients, and the population at large. These value-based principles build on a definition of “outcomes that matter to patients” and the basing of performance assessment and payments on these outcomes.

The International Consortium for Healthcare Outcomes (ICHOM) is a non-profit organisation committed to promoting value-based healthcare globally through universal measurement and reporting of patient outcomes. ICHOM has developed 46 Sets for conditions that account for nearly 60% of the global disease burden.

The Voice of the Patient (VoP) initiative is a pioneering effort to reshape healthcare systems by prioritising patients’ perspectives and focusing on outcomes that truly matter to them.

VoP facilitates unbiased, standardized data collection and meaningful insights that drive change, demonstrating clear correlations between care quality and patient experiences. Developed in South Africa between 2015 and 2018 is has been introduced in several markets, including the Australian private sector in 2020 where it has formed an integral part of hospital performance measurement. It has been instrumental in reshaping the Australian private health insurance (PHI) landscape, measuring and comparing data from 180,000 patients in that market alone. Now, the initiative aims to bring these proven methodologies to the UK, fostering collaboration to deliver value-based care that puts patients at the heart of the system.

Voice of the Patient UK introductory day agenda will:

Enable Payers and Providers to become more patient-centered

Establish the Value of Patient-Reported Data

Help you understand what to measure

Equip you to connect actions to outcomes, demonstrate correlations between hospital and consultant performance (from the patient's perspective)

Demonstrate downstream patient outcomes, including costs and experiences.

Empower you to drive change by de-risking and enabling easy implementation for UK insurers – including addressing all the data, privacy, security aspects.

Elevate learnings from other markets and how a network approach will work in the UK

Agenda

  • Speaker: Joanne Buckle, Principal and Consulting Actuary, Milliman
  • Introduction to the day’s agenda and setting the context for discussions.
  • Speaker: Jennifer Bright, President and CEO, ICHOM
  • Learn about the transformative role of patient-centered care in driving better outcomes and value-based care systems globally.
  • Daniel Erasmus, CEO, Insight Actuaries – Case Study: Australia’s Private Healthcare Transformation
  • A detailed example of how patient-reported data has reshaped healthcare funding and delivery in Australia.
  • Joanne Buckle, Principal, Milliman – Adapting Global Learnings for the UK
  • Exploring how the Voice of the Patient can be implemented in the UK to achieve patient-centered framework for funding.
  • Speakers: Joanne Buckle and Daniel Erasmus
  • An overview of the proposed pilot initiative, detailing the action plan, stakeholders, and anticipated outcomes.

Participants engage directly with the speakers and panelists to share their perspective, clarify insights and any details the pilot.

We invite you to join us to learn, share your views, and help shape a better care system for all

FAQs

The Australia private healthcare market has a very different regulated premium structure to the UK. However, it has a relative similar benefit package to the UK in that is focuses on secondary elective care and does not include primary care. Therefore the claims data structure is relatively similar in that they do not contain a lot of wider health information from the patient around, for example, chronic conditions, to allow more detailed risk adjustment.

Over the past 10 years PHIN has worked with the UK’s private hospitals, consultants and insurers to facilitate the collection and use of PREMs and PROMs (within the context of a broader private hospital & consultant activity and outcomes dataset) in order to ensure the patient voice is heard and informs future patient choices. It should also help the sector improve the quality of care.

PHIN will watch with interest the trial carried out by Insight, Milliman and ICHOM and will be happy to engage with its results and learnings when the trial is complete.

The Voice of the Patient initiative complements PHIN’s work and does not compete with PHIN and is in no way a replacement or alternative to PHIN. VOP collect data directly from the patient, based on condition-specific outcome sets and provides a different lens on the patient journey.

Patients explicitly opt into the VoP platform, providing informed consent for their data to be used for specific purposes—namely, comparing PROMs and PREMs to drive continuous healthcare improvement. Data handling adheres strictly to both the Australian Privacy Act and the UK's Data Protection Act, ensuring robust data security protocols aligned with international standards. All patient responses are de-identified, secured, and analyzed with rigorous standards, guaranteeing confidentiality and integrity throughout the process. Data is stored in secure, encrypted environments with access strictly limited to authorized personnel involved in the project. The platform implements comprehensive cybersecurity measures and regular audits to maintain data integrity and prevent unauthorized access.

Patients retain the right to withdraw their consent at any point during the trial. Upon withdrawal, their data will be excluded from further analysis and securely deleted from the platform in accordance with privacy regulations. This ensures that participants maintain full control over their personal information throughout the process.

Hospitals participating in the VoP initiative gain access to detailed, actionable insights that support targeted improvements. Data is segmented by patient profiles at a granular level, offering condition-specific feedback directly from patients. This empowers hospitals to enhance the aspects of care that matter most to patients, fostering a culture of continuous improvement and better health outcomes.

Insurers benefit from rich, condition-specific data that highlights which facilities deliver superior patient experiences and outcomes. This information allows for accurate, like-for-like comparisons, enhancing the context around existing claims data. Insurers can better understand their customers' health outcomes, enabling more informed decision-making and contributing to value-based healthcare improvements.

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