Type 1 and Type 2 Diabetes in Adults

The standard set

The ICHOM Standard Set for Adults who live with type 1 and 2 Diabetes is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Diabetes. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Evaluated via WHO-5

2 Evaluated via PAID

3 Evaluated via PHQ-9


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard

Project team

Chair | Fabrizio Carinci | University of Bologna
Chair | Massimo Massi-Benedetti | Hub for International Health Research
Research Fellow | Jana Nano | Erasmus MC/ Institute of Epidemiology/Helmholtz Zentrum München, German Research Center for Environmental Health/German Center for Diabetes Research (DZD)
Research Fellow | Magdalena Walbaum | Catholic University of Chile/Ministry of Health, Chile
Project Leader | Oluwakemi Okunade | ICHOM
Research Associate | Sarah Whittaker | ICHOM


Tim Benson* | WHO Patients for Patient Safety/ Consumers Health Forum of Australia/ Health Consumers Council of Western Australia
Rob Haig*


Sharon Fraser | International Diabetes Federation


Jean Claude Mbanya | University of Yaounde I


Maria Santana | O’Brien Institute for Public Health


Søren Eik Skovlund | Aalborg University and Aalborg University Hospital


Andreas Schmitt | Diabetes Center Mergentheim


Anil Bhansali | Postgraduate Institute of Medical Education and Research


Ronit Calderon-Margalit | The Hebrew University of Jerusalem


Mark Prabhaharan*


Cristina García Ulloa | Instituto Nacional de Ciencia Médicas y Nutrición
Sergio Hernández Jiménez | Instituto Nacional de Ciencia Médicas y Nutrición


João Raposo | APDP/Nova Medical School Lisbon


Hwee-Lin Wee | Saw Swee Hock School of Public Health and Department of Pharmacy, Faculty of Science, National University of Singapore


Jana Klavs | University Medical Centre Ljubljana Slovenia
Jelka Zaletel | National Institute of Public Health Slovenia/University Medical Centre Ljubljana Slovenia

South Africa

Naomi Levitt | University of Cape Town


Daniel Barthelmes | University Hospital Zurich

United Arab Emirates

Jihan Dennaoui | National Health Insurance Company - Daman
Saf Naqvi | Imperial College London Diabetes Centre

United Kingdom

Katharine Barnard | Bournemouth University
Paul Buchanan* | GBDOC/ Blue Circle Voices¹

United States

Anne Peters | The Keck School of Medicine of the University of Southern California
Mark Peyrot | Loyola University Maryland
William Polonsky | Behavioral Diabetes Institute, University of California
Andrew Pumerantz | Western Diabetes Institute, Western University of Health Sciences

*Patient representative
¹affiliated until August 2017

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