The standard set

The ICHOM Standard Set for Stroke is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients having a stroke. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Includes mood and global cognitive function

2 Includes pain and fatigue

3 Includes mobility, feeding, ability to return to usual activities, and self care and grooming

4 Includes social participation and ability to communicate

5 Tracked via the PROMIS SF v1.1 Global Health, with additional single item questions for mobility, feeding, self care and grooming, and ability to communicate. The Simplified modified Rankin Scale questionnaire (smRSq) is recommended to be included.


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard


Julie Bernhardt | The Florey Institute of Neuroscience and Mental Health


Sheila Martins | Hospital Moinhos de Vento, National Stroke Registry


Eric Smith | Neurology | University of Calgary | American Heart Association Get With The Guidelines-Stroke registry; Canadian Best Practice Recommendations for Stroke.
Frank Silver | University of Toronto | Ontario Stroke Registry
Patrice Lindsay | Heart and Stroke Foundation of Canada, World Stroke Organization


Liping Liu | Capital Medical University, Beijing Tiantan Hospital


Gerard Ribbers, MD PhD | Rehabilitation Medicine | Erasmus University MC; Rijndam rehabilitation center, Rotterdam, the Netherlands


Bo Norrving, MD | Lund University; Swedish Stroke Register (Riksstroke)

United Kingdom

Stephanie Gethin |Advanced Practitioner Occupational Therapist | Aneurin Bevan University Health Board, Wales, UK
Charlie Davie | UCLPartners Academic Health Science Network, Royal Free London NHS Foundation Trust

United States

Lee Schwamm | Harvard Medical School; Massachusetts General Hospital; American Heart Association Get With The Guidelines-Stroke registry; Paul Coverdell National Acute Stroke Registry; Stroke Joint Commission; Primary & Comprehensive Stroke Center Certification programs
Joel Salinas | Harvard Medical School; Massachusetts General Hospital
Mary George | Deputy Associate Director for Science & Senior Medical Officer, Division for Heart Disease and Stroke Prevention, Centers for Disease Control and Prevention | Paul Coverdell National Acute Stroke Program
Adam Kelly | Neurologist | University of Rochester Medical Center
Linda Williams | VA HSR&D Stroke QUERI, Indiana University School of Medicine
Teri Ackerson* | American Heart Association
Louise Morgan | American Heart Association

* Parent representative

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