Site recruitment open to compare outcomes in Cleft Lip & Palate: A Global Benchmarking Pilot | ICHOM – International Consortium for Health Outcomes Measurement

Site recruitment open to compare outcomes in Cleft Lip & Palate: A Global Benchmarking Pilot

Site recruitment open to compare outcomes in Cleft Lip & Palate: A Global Benchmarking Pilot

ICHOM is delighted to announce that we are currently recruiting sites interested in participating in our Cleft Lip and Palate(CLP) GLOBAL BENCHMARKING PILOT.

The aims of this project are:

  • Create a community of CLP providers to enable data comparisons and best practice sharing.
  • Optimize the ICHOM CLP Standard Set for data collection.
  • Collect and centralise health-outcomes data for CLP-patients based on the ICHOM CLP-Standard Set.

Please note that there is no fee or chargeto enter as a participant unit for the CLP – GLOBAL BENCHMARKING PILOT.

Finally, we would like to thank our sponsors for this project: Boston’s Children Hospital and Erasmus MC.

We are still looking for sponsors to move this project forwards and support its long-term sustainability, so please contact us a.delatorre@ichom.orgif you would like to become a sponsor.


The International Consortium for Health Outcomes Measurement (ICHOM) is a non-profit organization founded by three esteemed institutions (Harvard Business School, The Boston Consulting Group and Karolinska Institute) with the purpose of transforming health care systems by measuring and reporting patient outcomes in a standardized way, and by driving adoption and reporting of these measures worldwide.

Launched in 2012, ICHOM works with patients, leading providers, and registries to create a global standard for measuring results by medical condition. ICHOM supports one of the key strategic agenda items in the Value-Based Healthcare delivery framework, which aims to offer the best possible outcomes to patients for the lowest possible cost. By restructuring care-delivery around outcomes, and promoting superior outcomes with financial incentives, healthcare systems will improve quality and curb inefficiencies benefiting patients and stakeholder across the healthcare spectrum.

ICHOM takes a unique approach to defining health outcomes building patient-physicians partnerships. First, we involve patients directly in the process. All our patient representatives have been treated for the condition they are evaluating. Then, we bring together leading physicians from across the globe who specialize in treating this condition. These physicians hold diverse perspectives and are pioneers in their respective countries. Finally, the ICHOM team facilitates as physicians and patients discuss – and agree upon – the outcomes that matter most to them.


Once work is finished, ICHOM’s Standard Sets are published on its web site for all to see and benefit. ICHOM has now published 24 Standard Sets covering more than 50% of the global disease burden.

More information is available on