The standard set
The ICHOM Standard Set for Congenital Heart Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to adult and pediatric patients with Congenital Heart Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
Patient Population
A: Adult Outcome
P: Pediatric Outcome
Patient Reported Outcome Measures (PROMs)
- Measured by the Satisfaction with Life - Child
- Measured by the Satisfaction with Life Scale
- Measured by the Pediatric Cardiac Quality of Life Inventory (PCQLI)
- Measured by the PROMIS scale v1.2- Global Health
- Measured by the Work Productivity and Activity Impairment Questionnaire- General Health v2.0
- Measured by the Patient Health Questionnaire (PHQ-9)
- Measured by the General Anxiety Disorder (GAD-7)
