Paediatric Facial Palsy

The standard set

The ICHOM Standard Set for Paediatric Facial Palsy is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Evaluated via eFACE

2 Tracked via FACE-QKIDS - Appearance of the face

3 Evaluated via eating and drinking questions

4 Evaluated via speech questions

5 Tracked via Visual Analogue Scale

6 Evaluated via Snellen Chart

7 Evaluated via ocular symptoms questions

8 Tracked via PROMIS Paediatric Global Health

9 Tracked via PROMIS Peer-Relationships


Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.

Available materials:

  • Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
  • Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
  • Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
  • Press Release
  • Published Articles
  • Additional materials

Team that developed this standard

Project team

Chair | Adriaan Grobbelaar | Royal Free Hospital
Research Fellow | Daniel Butler | Imperial NHS Foundation Trust
Core Working Group Member | Tessa Hadlock | Harvard Medical School
Core Working Group Member | Gregory Borschel SickKids
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM


Christopher Coombs | Southern Plastic Surgery


Jocelyne Copeland | SickKids


Sinikka Suominen | Helsinki Uniersity Hospital


Akihiko Takushima | Kyorin University Hospital


Alexander Cárdenas Mejía | Hospital Dr. Manuel Gea González
Evangelina Vazquez Curiel* | Patients for Patient Safety


Teresa González Otero | Hospital La Paz

United Kingdom

Louise Graham* | Patient Representative
Raman Malhotra | Queen Victoria Hospital

United States

Faye Wachs | California State Polytechnic University Pomona
Jacqueline DIels | University of Wisconsin Hospital and Clinics
Kathleen Bogart | Oregon State University Lisa Ishii | Johns Hopkins Hospital
Lisa McKinley* | Facial Paralysis and Bell’s Palsy Foundation
Mara Robinson | Massachusetts Eye and Ear Infirmary
*Patient representative

Stay up to date

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