Heart Failure | ICHOM – International Consortium for Health Outcomes Measurement
Heart Failure

Heart failure

The ICHOM Standard Set for Heart failure is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Heart failure. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
HF

1 Includes dyspnoea, fatigue and tiredness, disturbed sleep, and peripheral oedema.
2 Includes health-related quality of life, maximum physical exertion.
3 Includes depression and anxiety, confidence and self-esteem.
4 Includes admissions, appointments.


© 2016 ICHOM. All rights reserved. When using this set of outcomes, or quoting therefrom, in any way, we solely require that you always make a reference to ICHOM as the source so that this organization can continue its work to define more standard outcome sets.


Team that developed this standard


Australia

John Beltrame | Queen Elizabeth Hospital
Tom Marwick | Menzies Institute for Medical Research
Christopher Reid | Monash University

Brazil

Sabrina Bernardez | Hospital do Coração
Salvador Paiva* | Association Friends of the Heart

Canada

Daniel Burns | University Hospital Ontario

England

Neil Churchill | NHS England
Suzanna Hardman | British Society for Heart Failure
Tina Kinsella* | Cardiomyopathy UK
Mike Knapton | British Heart Foundation
Theresa McDonagh | National Institute for Cardiovascular Outcomes Research (NICOR)
Hugh McIntyre | National Institute for Health Care Excellence
Richard Mindham* | Cardiomyopathy UK
Jillian Riley | Imperial College London
Vicky Parker | Camden Clinical Commissioning Group (ADD)

Greece

Gerasimos Fillipatos | European Society of Cardiology

Netherlands

Arno Hoes | University Medical Centre Utrecht
Luuk Otterspoor | Meetbaar Beter (ADD)

Singapore

Carolyn Lam Su Ping | National University Heart Centre

South Africa

Karen Sliwa | Hatter Institute for Cardiovascular Research Africa

Spain

Marisa Crespo-Leiro | European Society of Cardiology

Sweden

Hans Persson | Karolinska Institutet

United States

Mariell Jessup | Penn Heart and Vascular Centre
Frederick Masoudi | University of Colorado Hospital
Lynne Stevenson | Brigham and Women's Hospital and Harvard Medical School

Wales

Stephen Hutchison | Aneurin Bevan Health Board

*Patient representative

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Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors. The Reference Guide and Database are currently undergoing revisions and new versions will be made available soon. For further information, please contact Kemi Okunade (o.okunade@ichom.org)

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March 23, 2015