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Macular Degeneration

The standard set

The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Endophthalmitis

2 Individual treatments received for macular degeneration

3 Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire

3 Presence of fluid, edema, or hemorrhage

Download the flyer

A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.

Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.

Data Dictionary

An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.

Team that developed this standard

Australia

Mark Gillies | University of Sydney

India

Kim Ramasamy | Aravind Eye Care System

Japan

Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University

Malaysia

Norfariza Ngah | Hospital Selayang
Dato Shankar*

Netherlands

Caroline Klaver | Erasmus Medical Center

Singapore

Gemmy Cheung | Singapore National Eye Center

Sweden

Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden

Switzerland

Daniel Barthelmes | University Hospital Zurich

United Kingdom

Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society

United States

Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University

*Patient representative

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