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Overall Pediatric Health

The standard set

The ICHOM Standard Set for Overall Pediatric Health is the result of hard work by a group of leading physicians, measurement experts, and patient advisors. It is our recommendation of the outcomes that matter most to all infants, children, and adolescents from birth to 24 years of age - regardless of health condition. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Measured at 6-12 years by the PROMIS Parent Proxy Scale v1.0 - Global Health 7+2

2 Measured at 6-12 and 13-17 by the PROMIS Parent Proxy Short Form v1.0 - Cognitive Function 7a

3 Measured at 13-17 years by the PROMIS Pediatric Scale - Global Health 7+2

4 Measured at 13-17 years by the NIH Toolbox Self-Efficacy CAT Ages 13-17 v2.0

5 Measured at 18-24 years by the AQoL 8D

6 Measured at 18-24 years by the PROMIS Short Form v1.0 - Sleep Disturbance - 4a

7 Measured at 18-24 years by the PROMIS Pool v2.0 - Sexual Function and Satisfaction: Screeners (Q.SFSCR202, SFSCR203, SFSCR204bp)

8 Measured at 18-24 years by the PROMIS Short Form v2.0 - Cognitive Function 4a

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Download the flyer

A brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.

Reference Guide

A complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.

Data Dictionary

An index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.

Team that developed this standard

Project team

Working Group Chair | Kathy Jenkins | Boston Children’s
Research Fellow | Beatrix Algurén | University of Gothenburg
Project Manager | Jessily P. Ramirez | ICHOM
Research Associate | Nick Sillett | ICHOM

Australia

Matthew O’Meara | NSW Health
Michael Morris | Samuel Morris Foundation*

Brazil

Aida Luiza R. Turquetto | Heart Institute, University of Sao Paulo
Luiz Caneo | Heart Institute, University of Sao Paulo

Canada

Anne Klassen | McMaster University
Martin Offringa | The Hospital for Sick Children
Nancy Butcher | The Hospital for Sick Children

Colombia

Catalina Valencia Mayer | Fundación CINDA
Jaime Aurelio Cespedes | Fundación Cardioinfantil - Instituto de Cardiología

Italy

Kathleen McGreevy | Meyer Children’s Hospital
Klaus Peter Biermann | Meyer Children’s Hospital

Mexico

Naira Pereyra | PREVer Kids

Netherlands

Jan A. Hazelzet | Erasmus University Medical Center

Pakistan

Salman Kirimani | Aga Khan University

Singapore

Ng Kee Chong | KK Women’s and Children’s Hospital

Spain

Carlos Rodrigo | University Hospital Germans Trias i Pujol
Juan Jose Garcia-Garcia | Sant Joan de Déu Barcelona Children’s Hospital

Sweden

John Chaplin | University of Gothenberg

United States

Albie Alvarez-Cote | Milagros para Niños - Boston Children’s Hospital*
Emma Mew | Yale School of Public Health
Jim Papp | Mindful Metrics
Timothy L. Switaj | U.S. Army
*Patient Advisor

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Congenital anomalies

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