The ICHOM Standard Set for Overall Pediatric Health is the result of hard work by a group of leading physicians, measurement experts, and patient advisors. It is our recommendation of the outcomes that matter most to all infants, children, and adolescents from birth to 24 years of age - regardless of health condition. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
1 Measured at 6-12 years by the PROMIS Parent Proxy Scale v1.0 - Global Health 7+2
2 Measured at 6-12 and 13-17 by the PROMIS Parent Proxy Short Form v1.0 - Cognitive Function 7a
3 Measured at 13-17 years by the PROMIS Pediatric Scale - Global Health 7+2
4 Measured at 13-17 years by the NIH Toolbox Self-Efficacy CAT Ages 13-17 v2.0
5 Measured at 18-24 years by the AQoL 8D
6 Measured at 18-24 years by the PROMIS Short Form v1.0 - Sleep Disturbance - 4a
7 Measured at 18-24 years by the PROMIS Pool v2.0 - Sexual Function and Satisfaction: Screeners (Q.SFSCR202, SFSCR203, SFSCR204bp)
8 Measured at 18-24 years by the PROMIS Short Form v2.0 - Cognitive Function 4a
For more information on implementing this standard set, please click on the button below:
Standard Set materials have moved to ICHOM Connect and are still available free of charge. Please log in or register to gain access to unlimited ICHOM resources at a single click of a button. There, you can also indicate your interest in receiving updates about and implementing the Standard Set.
Flyer – a brief overview of the most important outcomes for patients relating to this ICHOM Standard Set.
Reference Guide – a complete overview of the ICHOM Standard Set, including definitions for each measure and selected PROM instruments, time points for collection, and associated risk factors.
Data Dictionary – an index of the outcomes and case-mix variables included in the standard set, how to code them, and the information you need to collect when implementing the outcomes in practice.
Working Group Chair | Kathy Jenkins | Boston Children’s Research Fellow | Beatrix Algurén | University of Gothenburg Project Manager | Jessily P. Ramirez | ICHOM Research Associate | Nick Sillett | ICHOM
Matthew O’Meara | NSW Health
Michael Morris | Samuel Morris Foundation*
Aida Luiza R. Turquetto | Heart Institute, University of Sao
Luiz Caneo | Heart Institute, University of Sao Paulo
Anne Klassen | McMaster University
Martin Offringa | The Hospital for Sick Children
Nancy Butcher | The Hospital for Sick Children
Catalina Valencia Mayer | Fundación CINDA
Jaime Aurelio Cespedes | Fundación Cardioinfantil -
Instituto de Cardiología
Kathleen McGreevy | Meyer Children’s Hospital
Klaus Peter Biermann | Meyer Children’s Hospital
Naira Pereyra | PREVer Kids
Jan A. Hazelzet | Erasmus University Medical Center
Salman Kirimani | Aga Khan University
Ng Kee Chong | KK Women’s and Children’s Hospital
Carlos Rodrigo | University Hospital Germans Trias i Pujol
Juan Jose Garcia-Garcia | Sant Joan de Déu Barcelona
John Chaplin | University of Gothenberg
Albie Alvarez-Cote | Milagros para Niños - Boston Children’s Hospital*
Emma Mew | Yale School of Public Health
Jim Papp | Mindful Metrics
Timothy L. Switaj | U.S. Army *Patient Advisor