Standard Sets

Start measuring outcomes that matter most to patients

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Defining outcomes that matter most

ICHOM Standard Sets are standardized outcomes, measurement tools and time points and risk adjustment factors for a given condition. Developed by a consortium of experts and patient representatives in the field, our Standard Sets focus on what matters most to the patient.

By creating a standardized list of the outcomes based on the patient’s priorities along with instruments and time points for measurement, we can ensure the patient remains at the centre of their care. For valid comparison, we know the importance of risk adjustment, so we also standardize these case mix variables. When developing a Standard Set, we bring together a multidisciplinary group of patient representatives, leading physicians and registry leaders to prioritize a core set of outcomes, which take into consideration outcomes from different treatments. Through the implementation of these Standard Sets, you can begin to measure, analyze and improve outcomes achieved in the delivery of care. We are continually reviewing our published Standard Sets.

To date, we have published 39 Standard Sets
covering different conditions and for specific patient populations.

We are continually reviewing our published Standard Sets.

Our Methodology

We bring together global teams of patient advocates, healthcare professionals and researchers to define outcomes in our Standard Sets


ICHOM takes a unique approach to defining health outcomes. All of our patient representatives have been treated for, or have cared for someone who has lived with, the condition they are evaluating. We also bring together leading physicians from across the globe who specialize in treating this condition. The ICHOM team facilitates as physicians and patients discuss – and agree upon – the outcomes that matter most.

Multidisciplinary approach

Physician leaders, patient advocacy members, registry leaders, and patients, help define:

  • Various treatment options
  • Outcomes resulting from treatments
  • Which health outcomes matter most to patients
  • Speciality experts across multiple disciplines

International leADERS

A standardized approach to comparing outcomes across cultures enables patients and caregivers to learn about which providers deliver the best outcomes and to begin to understand why providers in other nations achieve similar outcomes when they use vastly different treatments